| | Joined: Jun 2008 Posts: 309 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 309 | good to hear from you, Pete. hoping that is the last time you are at the mercy of the hands of dr futran  while he is a good man, you have been thru quite enough. please go slow and easy on the road to recovery ... men in your age bracket always seem to push it (my brother is about your age and every surgery he has i have to lecture him because he overdoes it and ends up with setbacks because of it ..) so slow down, let others tend to things for you and allow the body to heal let us know if we may be of assistance ... otherwise we will be here thinking of you and saying a prayer for you. take care (HUGS)
Rita - Age 44
wife, mother of 4 - ages 3,16,21,24 & grandma to 1
(R upper) Maxillectomy 8/8/08 - UW / Seattle, WA.
===============================
"Those who think by the inch and speak by the yard, should be kicked by the foot."
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | For some reason, it actually was easier than the last time -- I asked Dr Haakenslash if that is usual and he said it is not -- Kinda like winning a lottery -- Even the ICU wasn't the dim hell it was last time! He doesn't want to see me on his table again either!
Not going home Wed after all because my sister's flight from Back East was canceled for weather -- Maybe Friday -- The real problem is that the hospital sticks their neck out liability-wise if the send a recuperating patient home alone with a trach because something could go wrong fast! Don't know yet how long the trach stays in, but throat is swollen more than last time, so I expect it will be a while.
Have plenty of Nutren 2.0 on hand at home, plus 1.5 cases of VHC!
Misplaced my plastic flies so I didn't have that kind of fun.
Downstairs neighbor is having great fun feeding the rats, esp the yoghurt-covered raisin treats!
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | You sound upbeat which is so good to hear. Already looking for your flies to get into mischeif!
Sorry to hear your release has been delayed. Its good that the hospital isnt going to just send you home to be on your own. Yes, there is a big ice storm going on here right now.
Hope you feel a little better everyday.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | Ice storm Oh my oh my Christine I hope you are ok!!!! Got all supplies needed to last a few days. Those ice storms can be very hazardous but sooooooooooooooo beautiful! I guess I don't have to tell you that!! You are fully aware and I am confident prepared...Keep warm and sit by the fire and enjoy!!!
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2008 Posts: 489 | Sorry that you have to hang out longer at the hospital especially without your flies Pete. I'm certain that the nurses are happy to have you a few days longer (you are probably the highlight of their day) and it is better to be safe. Maybe it seems easier just because you knew what to expect. Take care and rest so that you will be ready to come home.
Patty
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | I am enjoying myself -- Even talked the Cutthroat Team in the AM into letting me pull the last drain after one of them removed the sutures -- More difficult than I thought, but it was the last one and had been in there for a while -- Then two of them ganged up on me and removed the 40 wire staples... Getting good at cleaning the trach cannula.
I just realized there is a very positive benefit to having PEG installed before the major surgery -- They didn't put in naso-gastric tubes!! I especially don't miss the one with the three sutures through my scepula!
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | Glad to hear you are doing so well, keep up the great healing!!!
Margaret
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C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2008 Posts: 489 | I agree about the PEG Pete. I hated the nasal tubes. Mine worked its way up and halfway out one night and was quite painful. The doctor finally came in about 4 AM and still refused to take it out. The staple removal is fun. I had an intern removing the staples from my leg and everytime I would say ouch he would start apologizing. I got to giggling so hard that I almost cried.
You sound as if you are doing very well. Do they have you sucking on those great little sponges on a stick yet??
Patty
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Hated that one too and so did the nurses.
They always had a terrible job getting to stopper off to change bottles and flush it.
Then an x-ray around 5 days post operation showed it was too long and kinked at the bottom of my stomach. Mentioned something about my being out of proportion (first I ever heard of it !!!)
Anyway removed sutures and pulled a couple inches off the length and restitched.
Ouch� but at last the problem was resolved however as it turned out I only needed it for a few more days.
Take Care
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Oct 2006 Posts: 46 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Oct 2006 Posts: 46 | Hi there, Pete.
I'm so glad to hear your "voice" on the forum. You sound like you are in relatively good spirits, which is great. I'm sure you are keeping the docs and nurses on their toes and entertained at the same time! Glad to know the PEG is working well for you, and here's to good news from here on out.
CG to spouse, tonsillar SCC, T2N0M0, tonsillectomy 9/06, 35 rad tx finished 12/06, no chemo. Positive PET 3/07 in tonsillar fossa (residual tumor), surgery 4/2/07 composite resection tonsillar fossa and BOT w/forearm graft and right ND.
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