| Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 531 | If you like V8 and still want the vegetables in it there are several different kinds that are available V8 Splash...strawberry bananna flavor, strawberry kiwi for a few...although I found them to have a lot of salt... Ketchup still burns wierd I didn't like it much before surgery though..
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Add ginger ale to the list too. It lights you fire real fast. I force the things that burn down sometime just to remind myself what they taste like.. Sugar is ine thing that gets me every time. That I am going to quit trying, even with cereal.. I do use the sugar substitute also.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 716 | Jim--wouldn't it be easier just to smell for the memories! Birch beer burns...I miss Birch beer.
I wonder if sweat and sweaty buffalo wings would burn? Just a couple...one?
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer 8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35 11-4-08 Recovering & feeling better | | | | Joined: May 2008 Posts: 219 Platinum Member (200+ posts) | OP Platinum Member (200+ posts) Joined: May 2008 Posts: 219 | Yea, I bet the ginger ale does lite you up. I tried Sprite and found out I can't drink soda's. It has been years since I drank a soda but one day at chemo a lady was drinking a sprite so I thought I would try. Big mistake!
Also, I had to start grinding up a few of my meds because they get stuck in my throat. Well one of them is my asprin and let me tell you that one does me up a job. But I can't swallow them no matter what I do other than to grind it up. Everything taste like salt to me. I can't even taste sugar.
SCC left tonsil, tonsillectomy with additional tissue removed 06/10/08, a few teeth on top left side removed 09/05/08,recurrence before treatment started at BOT and tonsil area, 35 IMRT treatments began 10/15/08, and Cisplatin IV (began10/16/08) weekly for duration of radiation.
| | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 716 | Angel,
Ask your doctor for liquid meds. Mine would burn awfully bad but mixing it with warm tea did the trick.
At one point through tx Gatorade was like drinking acid.
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer 8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35 11-4-08 Recovering & feeling better | | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | I had to avoid anything acidic during mid Tx to several months post Tx. Even canteloupe would burn like hell. Hot & spicy didn't work either. Nor did anything too salty. Like David though, after a year or 2 I was eating virtually anything I wanted. I was able to eat pizza and salad with dressing 2 months post Tx (and taste it).
It took longer to have every subtle flavor come back. Sweets took the longest.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | I was extremely sensitive to salt at first (post-nuking), which has now returned to normal, but my sweet tastes have NOT returned, and now my taste is even worse because my wrist didn't have taste buds... I can feel the effects of sugar, like in coffee, but not the sugar itself.
I also couldn't take the burn of regular Gatorade but found their G2 version is OK.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | First everything tasted burnt. It was like eating charcoal out of the firplace. Even water tasted burnt. That thankfully lasted only about 2 months. I was also overly sensitive to salt. Anything with a little salt would burn my mouth and taste awful. That took a long time to get thru. Forget soda, cant drink it at all, still burns my mouth. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Angels, Can you get the coated aspirin? That's what I have to use but they go down fairly well. I have trouble with some of the uncoated meds. I wonder where they get the ingredients for some of them? Hummmmm any barns nearby??? LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: May 2008 Posts: 219 Platinum Member (200+ posts) | OP Platinum Member (200+ posts) Joined: May 2008 Posts: 219 | Ray, I have asked numerous times about liquid meds but the Dr.'s wouldn't give them to me.
Gary, That gives me hope about the 2 months and tasting something. I sure hope i do as I am dehydrated still and so weak.
Pete, I will give the new gatoraid a try. Water and Ensure is all I am trying right now. I tried a burger and it felt like it ripped my throat going down so I don't want to do that again.
Christine, I won't miss soda's because I haven't be a person to drink them for years now. But I sure do miss the taste of food and chocolate and coffee. My mouth taste like salt all the time. I can't brush it out or mouthwash won't get the taste out.
Jim, Yes I do take the coated asparin, Ecotrin. That is one of the ones that won't go dowm and when it gets caught in my throat, it sacares me because it is a long time before I could get it to go dowm. I hope there aren't any barns nearby too. lol Hope you are getting better too. Today was my last treatments. I am on my way to recovery now! Yea! Angel
SCC left tonsil, tonsillectomy with additional tissue removed 06/10/08, a few teeth on top left side removed 09/05/08,recurrence before treatment started at BOT and tonsil area, 35 IMRT treatments began 10/15/08, and Cisplatin IV (began10/16/08) weekly for duration of radiation.
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