#85356 12-04-2008 09:22 AM | Joined: May 2008 Posts: 219 Platinum Member (200+ posts) | OP  Platinum Member (200+ posts)
Joined: May 2008 Posts: 219 | I thought I needed some vegetables bady and thought I would get some V 8 to drink. It tasted a little like pepper and hot but I drank 4 oz each day for 2 days and let me tell you, don't do it! It ruined my mouth and the hot pepper taste is still there and won't go away. lol Just thought I'd let others know so they don't make that same mistake. Now my RO office said don't drink anything citric. And no V 8 tomatoe juice at all. Angel
SCC left tonsil, tonsillectomy with additional tissue removed 06/10/08, a few teeth on top left side removed 09/05/08,recurrence before treatment started at BOT and tonsil area, 35 IMRT treatments began 10/15/08, and Cisplatin IV (began10/16/08) weekly for duration of radiation.
| | | | | Joined: Jun 2008 Posts: 309 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 309 | make your own fresh juice hon - it won't do that
carrot juice with a little apple is good for you and nummy
and adding in cruciferous veggies is also good
Rita - Age 44
wife, mother of 4 - ages 3,16,21,24 & grandma to 1
(R upper) Maxillectomy 8/8/08 - UW / Seattle, WA.
===============================
"Those who think by the inch and speak by the yard, should be kicked by the foot."
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Try some chocolate milk to soothe your sore mouth.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | Cans of whip cream!
It nicely coats and soothes. It does come however with a warning. Do it at your own risk if you are surrounded by family who want to loose weight.....
M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I was drinking a lot of the V8 and mine didn't have hot pepper in it,. I was buying it at Sams Club by the case. I bught some mix powder called muscle milk, just mix it with water and it does help put the meat back on ones bones. Not cheap tho unless the drug store has a sale.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2006 Posts: 294 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2006 Posts: 294 | Are you sure you weren't drinking the V8 Spicy version? I drank loads of V8 during Tx days (and still do) but never had such a problem. I did find that most anything even slightly spicy following Tx seemed to really seem hotter for quite some time.
Bill D.
Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
| | | | | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | I still have a problem with anything tomato. Early on after treatment tomato juice was worse than vinegar or pickles. Avoid them for now. You likely will find is less a problem as time goes on.
Be concerned about thrush or oral fungal infections. They will make the mouth far more sensitive. I never had "typical" (ie visable) thrush symptoms but convinced the doc that I wanted to try Nystatin to see if the burning sensation would go away. Every time I had excessive burning sensation, anti-fungal (nystatin) would make it go away.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
| | | | | Joined: May 2008 Posts: 219 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: May 2008 Posts: 219 | Rita,Christine, and Markus, Those sound good!
Jim, I went to recheck after reading your and Bill's post and it is just plain V8. Must just be my taste but the hot flavor won't go away, I'll just have to wear it off I guess.
Bill, I know one thing, it will be awhile before I try anything different than normal for me. lol I'm glad it didn't hurt you. When I was drinking it it sure did taste like something anyway. Now I know why.
Angel
SCC left tonsil, tonsillectomy with additional tissue removed 06/10/08, a few teeth on top left side removed 09/05/08,recurrence before treatment started at BOT and tonsil area, 35 IMRT treatments began 10/15/08, and Cisplatin IV (began10/16/08) weekly for duration of radiation.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Another thing to beware of is Chinese food. There is some kind of spice in it that gave me the same reaction. Luckily I had my chocolate milk handy.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | At first everything tasted like crap and I couldn't handle fizz or citrus. It almost seemed that everything I liked tasted the worst with the exception of milk. Now 2+ years post Tx and I have ZERO limitations. I don't think my saliva nor my taste is 100% like it was pre Tx but at least everything I use to enjoy, I can enjoy once again. This didn't happen over night so please be patient and see what happens to you.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | |
| Forums23 Topics18,242 Posts197,125 Members13,310 | | Most Online1,788
Jan 23rd, 2025 | | |
|
