| Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | [quote=davidcpa]Good news....If he's like most of us he will NEVER have to shave under his chin again. Saves time and materials. That's the CPA in me. [/quote]Thirty-odd years ago, I grew a beard and only shaved under my chin about twice a week -- In a former life as a Corporate Cubicle Convict, a colleague gave me a package of Wilkerson Sword razor blades and joked that he had given me a Lifetime Supply!
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Jul 2008 Posts: 507 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2008 Posts: 507 | After TX ended, my neck burn did not get any worse. As best I can recall it was about the same for the first week then quickly improved.
Also I didn't have any more nausea, but I was real tired for the first month of recovery.
Don TXN2bM0 Stage IVa SCC-Occult Primary FNA 6/6/08-SCC in node<2cm PET/CT 6/19/08-SCC in 2nd node<1cm HiRes CT 6/21/08 Exploratory,Tonsillectomy(benign),Right SND 6/23/08 PEG 7/3/08-11/6/08 35 TomoTherapy 7/16/08-9/04/08 No Chemo Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11
| | | | Joined: Sep 2008 Posts: 27 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Sep 2008 Posts: 27 | Don - that's what I like to hear! I hope Tim's recovery goes as well as yours did. Today's the last day of radiation. YEA!
Thanks, all!
Caregiver to husband, 44, nonsmoker, nondrinker Diagnosed 7/15/08 with BOT SCC, stage IVa. Two positive nodes removed Cisplatin and erbitux ended 10/15/08 Radiation over 10/20/08 Back to work 11/24/08 PEG out 12/9/08 Scans 12/2008 and 3/2009 Clear
| | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2007 Posts: 794 | Good Morning Wendy, My mom had awful neck and collar burns! I used the aquaphor and we were also told to do domeboro soaks, I recall they felt wonderful to her--just make sure that you use very soft gauze or maybe a baby washcloth. I was also given some great advice from someone here to take pictures of my mom as she was healing. At first it seemed a bit unsettling to do, but really within a matter of a week to have something to look back at gave us so much encouragement. I believe the aquaphor was also the best choice for her. My mom started receiving HBO tx's in the early summer and recently finished, though I think she may be receiving more soon. I wish I could go and sit through one with her....it's amazing how wonderful she looks! I think as CG we should be allowed a few sessions  I'm not with her right now so I can't go and see what was given for the nausea, I'm fairly certain I may have written something about it in an earlier post, probably from Oct. 07. WOW!! I can't believe it's a whole year! I suppose I should be posting somewhere else about that subject!! My mom survived on pepsi--I know with a sore tongue! (This was prior to her brachy therapy). She also ate Campbells DOUBLE NOODLE Chicken Noodle soup. It is bland and the noodles were easy to swallow. Wendy, it was so hard as a CG; so many questions to which the answers seem so few. Trial and error seemed the path we all have had to make...once and a while you get a home run! Let me know if you need me to ask the pharmacist about the nausea medication, my brain seems to have fogged since when all this started but it is coming back!! Mom had the 'chemo brain' and I don't know what to call what happened to mine!! Donna
Donna CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2007 Posts: 794 | Just wondering....are you Phillies fans? So excited about the World Series! Maybe that will give your hubby something different to think about? Anything different that didn't involve tx's helped my mom!
Donna CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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