#81367 10-01-2008 11:28 AM | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | I have been living with the a loose tooth for a year now because of bone loss or resorption after my jaw reconstruction failed. I had a part of my jaw removed, and a bone put in, but it failed so my ends of my jawbone were going away. I went from one specialist to another and finally, my ent and I decided to wait and see. I did and yesterday, I had my first panorex in a year, and the bone
has not disappeared anymore but has formed a nub which should stay that way. ( although I feel like an experiment).
My old dentist cancelled, and I saw a brand new one, MD also and a female and just up on everything. She is even going to try and be creative and make me a mouth quard for night sleeping so
I don't bite my cheek anymore. I was so excited. She even talked me into getting my teeth cleaned at her facility-I have been scared to because my jaw moves on it's own.
I drove Dr. Mike crazy with this a year ago and then I just kept to myself with my stupidness.
I am tickled and wanted to share!
Thanks for listening-I will let you know the outcome. Shoot-I may even have my wisdom tooth pulled that everybody wants out.
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
| | | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Debbie,
I am so happy for you! Hearing good news makes everyone so hopeful!
Donna
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | | Joined: Mar 2008 Posts: 404 Likes: 2 "OCF Down Under" Platinum Member (300+ posts) | | "OCF Down Under" Platinum Member (300+ posts)
Joined: Mar 2008 Posts: 404 Likes: 2 |
Well done Debbie, that is great news.
Karen
46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Debbie,
"A new broom sweeps clean" - congratulations, it seems you have been very fortunate in finding this new dentist.
Malka
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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| | | | | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Malka,
Was it you that told me your dentist made a mouth guard for
you but put it in the front of your mouth?
Has anyone had any experience with mouth quards?
thanks
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
| | | | | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Just to update, I did get a mouth quard and boy does it help!
Looks like invisaline. My new dentist looks at me and I know
she wonders how I got this way. She is not even charging me yet
until I come back in a month and see if it works or needs adjusting somehow.
It really is nice to have a doctor with some compassion for a change. My husband and I can't believe how bad some of the docs
have treated me.
Don't give up.
PS. I have not lost anymore bone!!!!!!!!!!!!!!!!!!
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Debbie,
Way to go!! I am so happy to hear that you are getting relief and compassion from this new dentist.
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | I have also recently noticed some looseness in my teeth, so I have taken to wearing my fluoride trays to bed as a guard set. Noticed also some clenching when I watch crime/thriller DVDs!
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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