| Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | One reason my balloon-less PEG doesn't fall out is that it is 17" long and it has a couple of tight curves in it, so it would take a long pull with some effort.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Jul 2008 Posts: 228 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Jul 2008 Posts: 228 | I talked to a lady today for the registration stuff at the hospital (since I'm going through the OR to have my peg removed) and they are making a big deal out of this. I kind of laughed because she mentioned me having an IV for it in case they have to give me a sedative and she was asking me about any reactions to anesthesia that I may have had. Finally I just stopped her and told her they didn't put me under when they put it in, so I seriously doubt they are going to put me under when they take it out. So, I'm just ready to get this thing out!! And Pete I would be freaking out if I had a peg that I potentially could take out and put back in no matter how long it was. Although I was tempted the other day to just call up the doctor and ask him to walk me through pulling out my own peg so I didn't have to go in to the hospital!!
Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.
**** Stephanie passed away 12.15.09.... RIP our dear friend****
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | You don't want to be taking out your own PEG if there's an "anchor" on it, unless you have removed a tooth with the string and door method.
What my Doc did with the "anchored" PEG was just give it a good yank while I was on a table with nurse and dressings standing by. It was a short sharp pain, with some minor bleeding, and then it was over.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Jul 2008 Posts: 228 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Jul 2008 Posts: 228 | Peace out Peg Tube!
Haha, it's GONE! And the doctor even said I could have taken it out on my own if I wanted to, apparently a lot of people do...HA! It didn't hurt at all and it didn't bleed. I checked in at the admissions place, they brought me back to a room and took my vitals and told me to get in the gown, I argued for a second with the nurse wondering why I had to wear a gown for a 2 second procedure but I did it anyway. Then they came to take me back and I was informed that I did not need to go through all that stuff because it's an outpatient procedure (I could have told them that, and had tried a few times, but no one would believe me). I put my clothes back on and then they brought me back out to the waiting room but didn't tell the doctor that was removing the tube that they had moved me so he was looking all over the place for me. Finally I recognized him when he walked by and I asked him if he was looking for me, and he was. He brought me back, sat me on a table deflated the balloon, pulled the tube, and put a bandage over it and sent me on my way. I told him about how they had mentioned wanting to do an IV in case they had to do anesthesia and he laughed. I wanted to ask him if I would have been able to eat breakfast this morning before the procedure but I figured it was better to not know, I'm pretty sure I could have (I was starving by the time we got out of there!).
The good news is that the tube is out!!!
Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.
**** Stephanie passed away 12.15.09.... RIP our dear friend****
| | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2007 Posts: 939 | Oh what a feeling...freedom from the dangling appendage...congrats and happy eating.
Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997. DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0 TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5. TREATMENT END: 10/1/07 PEG OUT: 1/08 PORT OUT: 4/09 FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | Joined: May 2008 Posts: 551 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2008 Posts: 551 | Fantastic!!!
So. What'd you have for breakfast??
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08 Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016 Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
| | | | Joined: Jul 2008 Posts: 228 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Jul 2008 Posts: 228 | Margaret -
We picked up Whataburger (burger and fries...it's the only fast food I'll eat!) on our way home, I was starving and I got out of there at like 10:00 am and nothing is serving lunch at that time! We are celebrating tonight by going out to Cheesecake Bistro with a bunch of friends!
Deb-
Thanks so much! It's so nice not having that thing taped to my stomach anymore! I haven't not had tape on some part of my body since May 19th, so I'm looking forward to getting this bandage off soon!
Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.
**** Stephanie passed away 12.15.09.... RIP our dear friend****
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Steph: What a great feeling you must have being rid of that awful thing. It serves a much needed purpose but it sure is a pain in the but sometimes. Glad you are healing up so quickly. Congrats  ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jul 2008 Posts: 507 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2008 Posts: 507 | Sweet 
Don TXN2bM0 Stage IVa SCC-Occult Primary FNA 6/6/08-SCC in node<2cm PET/CT 6/19/08-SCC in 2nd node<1cm HiRes CT 6/21/08 Exploratory,Tonsillectomy(benign),Right SND 6/23/08 PEG 7/3/08-11/6/08 35 TomoTherapy 7/16/08-9/04/08 No Chemo Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11
| | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2008 Posts: 711 | That is a great feeling. Got mine out 2 weeks ago and actually went swimming last weekend for the first time all summer. Enjoy your freedom.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer. And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer. May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
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