| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | David,, did the liquid meals seem to fill you with a bloating feeling right away? I take them as you directed and always have that ready to burp feeling. They leave my mouth with a dry feeling too, so I down a bottle of water right away.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Robin used to yell at me when i was doing his feeds that he couldn't take any more because he was so bloated.That was the cause of most of his lack of nutrition issues.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | Hi Jim. Eh, good and bad news. Tumor is shrinking in throat, which is wonderful that treatments are working but Dad's not doing so great.  Not getting enough in that dang tube! Nurse told him at radiation today he is getting dehydrated. Lots of phlem too. Went up to see him 3 weeks in a row, skipped last weekend. I needed a break, and Mom said she just wanted to be alone. Wanted to get in her car and go somewhere by herself. Totally understandable. She ended up sitting in her car at the beach listening to music. She said it was the most quiet, tranquil time she has had in months. This has been so hard on her too. This weekend is my 40th birthday, they really want to be here for the big party I am having but can't be. It's hard. I will probably drive up to Los Angeles the following weekend. Thank you for asking, you are so thoughtful. Jim, I worry about you losing so much weight in such a short amount of time!!! Please take care of yourself, ok? Or we WILL send David over there to whip your booty in shape! HAHA. As always, thinking about you. {{HUGS}}
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | LD,
I can help him but I ain't superman. How does one whip a 100 yr old body into shape?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | LOL,, I knew there had to be somethin coming from Dave. This 100 yr old body right now looks better than some of the "much" younger ones. It doesn't show what it feels. THat I am glad for. LOL Besides, David would probably injure me either mentally or physically. LOL and steal my VHC. LARRYSDAUGTER , I want to wish you happy 40th so I don't miss it. Are we all invited to your party? David could do your taxes, FREE of course as we partied. LOL I hope your mom's mind is relaxing and giving her a break.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Easiest way to whip ANY man into shape is to take his remote-control away!
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | LOL Brenda, those are fightin words.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Ok ,, another MRI this coming tue the 12th. That will be a busy day. Rads at 11:15, MRI at 11:45 and chemo at 1:15. gonna be a long day.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Nov 2007 Posts: 45 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Nov 2007 Posts: 45 | Thanks for responding Jim. I am waiting for the bio on the new spots on the right side of tongue and floor of mouth. It has been 2 months since the dx on the reoccurance and I am a wreck. Dr. gave me time off from work ( I should retire anyway ) but as soon as I get the dx on the new I am going back to work until the treatment actually starts. I don't think my Drs. quite know how to handle this. Have you had the implant yet? What was it like, they told me a couple of ways they could do it. What is your chemo treatment - Please let me know.
Con
con
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Con, I get the implants the 29th of Feb . I wish I g=had some wisdom for you but am myself wondering about it. All I know for sure is that I will be in space for at least 3 days on pain killers ans isolated, The chemo I get is Erbitux. I wish you all the luck in the world with your treatment and hope the Drs have a plan in place soon.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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