| | Joined: Jan 2004 Posts: 104 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Jan 2004 Posts: 104 | Jim's being a sweetie!
He knows how much I wish I could care for my dad, but am denied. Thanks Jim! If we were closer, I would be there, you could count on it!
Dad had oral lichens planus, and oral leukoplakia before T2 SCC,2 nodes.
DX10/23/03
IMRT 12/29/03.30 rad,3 boost.
Brachytherapy 3/8-3/11/04.
Recurrence Nov07 Stage IV.
4 Surgeries
No rads, no chemo
I have oral lichens planus,
thrush,leukoplakia 2/20/08
6/2/08 biopsies "inflammation"
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I know you would be here Deb and thanks fo rbeing kind LOL Now for all you calorie and protein counters, I just browned a nice size chuck roast and flavored it, I'll put it in the slow cooker in the morning and let it tenderize all day. It's way too much for me and I hope someone stops and takes most of it. I'm going to grind it , mix it with cheese and relish like ham salad. I have made it before this way and it's delicious, I think I can handle that. Leftover turkey is good this way too.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Jim
I am thinkin of you during all of this !!
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
| | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | Hi Jim, Been outta the loop the last couple days and just got caught up on your post. Hang in there sweetie. But remember, you don't have to be tough! It's enough I worry about my Dad getting enough nutrition, I don't want to be worry about you too!!! Sending you one of my cyber hugs! 
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Need a carer do you Jim? whats the weather like out there?
((((hug)))
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | The weather the last 2 days has been great for winter. I have been up since 5:30 and it was 56 at that time. Tomorrow back to normal with snow showers mixed with rain. I need more than a giver Also need a brain transplant. LOL I needed that (((HUG ))) too.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | LarrysDaughter. Thanks for the hug. I wish I got it at bedtime so I would have slept better. Been up since 5:30 with this goo in my throat and it's buddy pain. LOL You have enough to worry about with your dad. Ihope he is beginning to heal and feel better. Have you been to see him again? I don't envy you the drive to see him at all. Just gotta give you a (((HUG))))for later. Have a great day..
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I remember dreading trying to keep up each day so sometimes when I would wake up in the middle of the night I would down a can of "food" and rush back to bed hoping it would stay down and I would get a jump on the rest of the days' requirements. I also had rad first thing it the am which I liked because I always seemed to feel a little better as opposed to later in the day.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2007 Posts: 45 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Nov 2007 Posts: 45 | Jim: I was scheduled for rad implants also - had tongue ca about 6 years ago and now reaccurance. PET, MRI and CT all showed ca limited to left side of tongue - where it was before. Had 1/4 of tongue removed 6 years ago and 33 rad external treatments. Was all set for the implants because all the test showed it could be done on the left side, however all of a sudden I have a spot on the right side and at the front floor of my mouth so they delayed treatment until I have the bio which I should have today. The spot on the right side doesn't alarm me as much as the spot on the floor of my mouth. Why did they have to remove your teeth for the implants? Let me know how it goes for you. God be with you.
Con
con
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Con, they had to remove my teeth for the implants. The seeds would decay my teeth and cause and infection so therefor the teeth had to go. I sure hope and pray that you do much better and not worry too much. I did and it cost me bigtime until I got it in my thick head that worry was just ruining my life. We have these great friends on here to encourage us thru these hard times and I do like to lean on them. You will be in my prayers.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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