#60998 06-02-2007 01:46 AM | Joined: Apr 2002 Posts: 52 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Apr 2002 Posts: 52 | Hello Everyone, I had my Pet scan Wed. called PD yesterday who gave me what I believe is great news. I had full body scan and only a 1cmm spot showed up in throat. He also said carcinoma in situ would also light up.
Surely such a tiny spot doesn't require the stripping away of my esophagus, voice box, raising stomach etc like the chief of staff was going to do to me in HUP. I'm so angry with him I'm having a problem getting over it. They say time heals all wounds, I hope so.
Now I've a problem finding an ENT to remove this without butchering me. Going to call Ins. Co. Monday and see if they can help.
Thanks for your info and good wishes
Good luck to you all
Marlene
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#60999 06-02-2007 02:58 AM | Joined: Apr 2007 Posts: 18 Member | | Member
Joined: Apr 2007 Posts: 18 | Marlene,
What wonderful news! Hope your search for an ENT and the following procedure is quick and as successful as the scan was.
All the best,
Elaine
Caregiver to husband 43, non-smoker, social drinker diagnosed Mar07 SCC tongue lymph node involvement. Started treatment May 2/07 35 radiation tx with 7 Cisplatin boosters completed June 22/07. Clear PETScan Oct 07
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#61000 06-02-2007 03:08 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | That is wonderful news Marlene. Good luck finding the right surgeon....
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#61001 06-02-2007 03:58 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Marlene,
I know what you mean. I went through 6 docs before I found Moffitt and all the Tx plans were different. The 4th doc, who I still refer to as Dr Death, told me things I still angrily remember but he was also the one that got me in to see the people at Moffitt so that helps with my anger.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#61002 06-02-2007 09:16 AM | Joined: Feb 2007 Posts: 176 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Feb 2007 Posts: 176 | Marlene,
It's easy to get angry, but try not to remain angry. Just always remember that all Doctors do not know all the answers all the time. Use your resources well, and try to move on. That is why this forum is here. We have all had many strange medical encounters out there. The sooner that you put it behind you, the better off you will be. Celebrate all the good news.
All the best,
Rob J.
6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit)
3-9-09 last of 30 HBO treatments.
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#61003 06-02-2007 10:14 AM | Joined: Apr 2007 Posts: 131 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2007 Posts: 131 | We had a devastating experience with our ENT. It was a horror story. To put it simply, he wrote my husband off. The current doctor told us to put it behind us and concentrate on the now. It was good advice and everytime that doctors' name comes up we remind ourselves what are current doctor said. He told us to put the energy into the current situation..and we did..For myself, being in the nursing field we discuss doctors from time to time. I can assure you I will be the first person to speak up about this doctor.
I also made it clear to our family doctor my feelings regarding this doctor. Tell 25 people, then they tell 25 more, then..and it goes on...These doctors should be accountable. Hope all works out for you...Carol...
Carol CG to Husband age 60 Stage IV SCC right tonsil T4AN2B tx rad x 35 chemo x 2 Currently after treatment no sign of cancer in throat. (all clear to date)
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#61004 06-02-2007 04:12 PM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2002 Posts: 1,140 Likes: 1 | Marlene's horrible experience should serve to illustrate why no one should go blindly into treatment. Had she not been a strong and smart advocate for her own quality of life, she would have ended up in very, very bad shape -- and for no good reason. This is not to say one should doctor shop until hearing what pleases, but it seems prudent to seek concurring second and perhaps third opinions when drastic treatment is recommended.
To you, Marlene, WOO-HOO! | | |
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