#5687 07-11-2005 01:20 PM | Joined: Jul 2003 Posts: 235 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Jul 2003 Posts: 235 | Last Wednesday when my mom was admitted to the hospital they noticed white patchy stuff in the middle of her tongue. It hasn't gone away. I asked them to take a culture, and it came back negative for infection. I requested a brush biopsy, but the resident didn't think it was anything to be alarmed about. Given her history or oral cancer, I'm always alarmed when anything develops in her mouth. She has since been discharged from the hospital, so I made a frantic call to her ENT where she received treatment and requested an appointment. We're scheduled for Friday. Has anyone had any anything similar 1.5 years post treatment? I'm going to have to wear diapers for the next four days, this rollercoaster ride is doing a number on my stomach.
Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.
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#5688 08-05-2005 01:05 AM | Joined: Mar 2004 Posts: 8 Member | | Member
Joined: Mar 2004 Posts: 8 | Hi-I saw your post & thought of some ideas to ask about. One is a condition called leukoplakia (my mom has a very rare & dangerous form of it)...some other types are not so bad and two would be yeast infection. I've read about it but it's been awhile...at least these are things you can ask the MD about!!! Good luck..hope this helps!
Tracy
My mom had 3 radical neck dissections, tumor was stage 4 surgically removed. Set to begin Cyberknife & radiation combo for 6 weeks.
Trace
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#5689 08-05-2005 08:04 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Didier, The top and tip of the tongue are not usual places for this cancer. If they tested for yeast (thrush) then it may be something called "geographic tongue". It is harmless and sometimes looks like a map with splotches and lines (hence the name geographic) The cause is not well known and it usually goes away by itself. By all means have the ENT look to be sure. Try to relax.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#5690 08-05-2005 03:19 PM | Joined: Mar 2002 Posts: 4,918 Likes: 65 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 65 | A defination of geographic tongue on the board is here http://www.oralcancerfoundation.org/cgi-bin/ultimatebb.cgi?/ubb/get_topic/f/1/t/000255.html , but if it is isolated to the center of the tongue this is probably not what it is. GT covers large areas and almost daily changes patterns. Remember that there are plenty of benign things this can be.....
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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