#47528 12-13-2006 10:51 PM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | My son has only 4 more Radiation sessions but my question has to do with something his doctor (Oral & Maxillofacial Surgeon) told us immediately after surgery for removal of 1/6 of his tongue. He said that the tongue regenerates and that it takes about a year for it to grow back. I've searched on this site and also on google but find nothing to support this although I did find research done with snakes and rats concerning tongue regeneration. Has anyone heard of this or perhaps experienced tongue regeneration? I was wondering if it depended on how much of the tongue is removed.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | |
#47529 12-14-2006 06:21 AM | Joined: Jul 2006 Posts: 446 "OCF Canuck" Platinum Member (300+ posts) | "OCF Canuck" Platinum Member (300+ posts) Joined: Jul 2006 Posts: 446 | My tongue was not affected, but "regeneration" is news to me! I'd wonder about the use of the word, whether the Doctor meant the functional return to near normal, or actual regrowth.
Sorry, but I suspect there may have been a misunderstanding. I'd love to hear that I'm wrong though! Wayne
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
| | |
#47530 12-14-2006 06:28 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2004 Posts: 837 | Anne-Marie,
I agree with Wayne that it sounds like some sort of misunderstanding. Like your son, I had about 1/6 of my tongue removed. That was almost 18 years ago, and I have yet to see any signs of "regeneration"!
However, it did heal quite well overall following surgery and radiation, and I've learned to live with the rather minor inconvenience of a lop-sided tongue.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
| | |
#47531 12-14-2006 06:34 AM | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2006 Posts: 583 | Hi Anne,
I heard that phrase but it was to do with the cells of the tongue. The tongue will heal it self, but not grow the part that was removed. I had part of tongue removed and it has not grown back. The Dr. said it would completely heal in a year. Maybe that was what your Dr. said.?
I hope your son is doing OK, it is a hard road to travel. Soon he will start to recover from all the treatments...
Take care. Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
| | |
#47532 12-14-2006 07:21 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | Taste buds regenerate themselves. That may have been what the surgeon meant. The tongue itself is a muscle and doesn't regenerate anymore than any other muscle.
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | |
#47533 12-14-2006 03:10 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | Hi Anne-Marie,
I had a 2 cm semicircular section of the side of my tongue removed almost 2 years ago. Today I have a small divot in the surgical area. It is maybe only 1/2 a centimeter.
I do think that the term regeneration may be inaccurate.
Aside from my personal experience, I can also draw from my observations as a dentist to answer your question. When a person has all of their teeth extracted and doesn't wear dentures, their tongue can get larger. Normally the teeth help to mantain the tongue's size. I have seen this many times but, it doesn't happen to everyone.
However, whatever you call it, the tongue can can enlarge, but there are limits to how much. With one sixth missing, I wouldn't expect it to all come back, but possibly some noticable difference may occur.
Hope this helps.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | |
#47534 12-14-2006 05:00 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | WOW, Jerry, one never knows what one wil learn on this site. So now I am wondering, since all but 5 front upper teeth were removed when John had his 1st surgery in April 05. Altho part of his tongue is gone, couldthe remaining part have gotten bigger? Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
| | |
#47535 12-14-2006 05:10 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | Amy,
Might be difficult to tell. I think the larger amount removed, the more difficult it would be to tell.
Have to admit, I probably spent a lot more time checking out my tongue than the average person.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | |
#47536 12-16-2006 01:38 PM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Thank you so much, everyone! It really helps to get all these ideas and personal experiences and Jerry - I found your explanation very enlightening. When the surgeon first told us, there were three of us - my daughter, myself and a retired psychiatric nurse friend of mine and she just told me that she had heard the doctor say the same thing about the tongue regenerating. She also said that as a nurse, she was surprised because she had not previously heard of this "regenerating". I can see now, that since the teeth help to maintain the size of the tongue and when part of the tongue is removed, the resulting space could possibly allow the tongue to "spread out" or enlarge.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | |
Forums23 Topics18,248 Posts197,137 Members13,320 | Most Online1,788 Jan 23rd, 2025 | | | |