#4640 01-07-2005 09:23 AM | Joined: Jan 2005 Posts: 94 Senior Member (75+ posts) | OP  Senior Member (75+ posts)
Joined: Jan 2005 Posts: 94 | Danny Boy,
I hadn't thought about dehydration. After HBO treatments I didn't need to carry the bottle everywhere like I did before, so I stopped. Now, I'm licking my lips like a PetSmart lizard. Maybe it's the water, so I'll make sure I get plenty.
Ken
SCCA T2N1M0 diagnosed 11/02, radical neck dissection, 7 weeks radiation, 6 surgeries to deal with osteonecrosis, 10 weeks hyperbaric oxygen. "Live strong. Laugh often."
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#4641 01-07-2005 01:30 PM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | Danny,
Good point but I must say that in my case I drink SO MUCH water that at times I think I'm going to float away!!! For now I'm going to try to aquaphor I still have on hand - that is, at least until they come up with a travel size can of crisco like Ken suggested!
Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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#4642 01-07-2005 04:03 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Travel size Crisco, that would be so cool! Crisco on the Go. I learned the crisco trick in high school, livng in Maine, dead of winter, no vaseline in the house. My lips were on fire from being chapped and I was desperate, lol. It worked.
Eileen, I remember also that aquaphor had a nasty taste.
I am going to think on the water issue also, I don't drink enough of it and that may be the problem.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#4643 01-08-2005 05:14 AM | Joined: Feb 2004 Posts: 218 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2004 Posts: 218 | Flavored travel size Crisco, that would be the ticket! Not sure if I'd pick spearmint or bacon!
- Sheldon
Dx 1/29/04, SCC, T2N0M0
Tx 2/12/04 Surgery, 4/15/04 66 Gy. radiation (36 sessions)
Dx 3/15/2016, SCC, pT1NX
Tx 3/29/16 Surgery
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#4644 01-08-2005 08:20 AM | Joined: Jan 2005 Posts: 108 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2005 Posts: 108 | Thanks for the lip-tip Ken. I have lip balm stations around the house and a few pockets besides. I'll check our local pharmacy for the Aquafor...we sometimes don't have products in Canada for a few years after the USA.
I am totally bereft of saliva so when I lick it's probably a loss of moisture to the lips, even tho I always have my bottle.
With my "gecko-neck" I could probably do a good impersonation of that pet-smart mascot.
Always something good to be learned here.
Cheers,
Fran
SCC Base of tongue diag. April 04 Stage IV, mets to rt. neck multiple nodes 35 rads+8 boosts First recurrence Jan05. Rt.rad neck dissection Feb02/05. Recurred with bone mets in neck July 05.
Committed to survival with dignity.
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#4645 01-11-2005 08:38 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Another great product from the Vitamin Shoppe ( www.vitaminshoppe.com) is a product with tea tree, Lip Rescue by Desert Essence. I have used it during winter months for many years and it is one of the only things that has worked for me. Having worked in the pork industry for 25 years, I just couldn't imagine using lard on the lips. How would you unclamp the dog?  And, by the way, Sheldon, what were you leaving the Aquaphor lip prints on, anyway??? Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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