Previous Thread
Next Thread
Print Thread
Page 3 of 4 1 2 3 4
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
It is amazing when we think of the people that made an impression on us and often without even knowing that they did. I've met some pretty great people in the Rad waiting room while waiting for my son to get his Tx. . . . the lovely Cookie Lady, who always had cookies to offer even though most people politely declined - especially those well into their TX; the 45-ish gentlement who was always laughing and cracking jokes; the very young man (my son's age) who shared his story and told us about OCF. And then one day, it was a beautiful, quiet, gentle collie dog with soulful eyes and a bright scarf around his neck accompanied by a young woman. He came and sat in front of my son and me and made eye contact. Then, as soon as my son extended a hand, the collie drew a little closer and there was a special connection. It seems he was officially a therapy dog and did make a lot of people smile in the Rad waiting room.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Aug 2006
Posts: 294
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Aug 2006
Posts: 294
It's certainly a difficult call. Both of my parents went out like a light with heart failure with no prior history of heart disease. Was that the way to go at ages 68 and 69? I really don't know but I do know that neither of them had any chance to fight back as they apparently never saw it coming. My mom found dad dead on the kitchen floor at 4AM and less than 2 years later it hit mom while driving down a rural road near her home. Thankfully she had time to pull off into a shallow ditch without endangering others. I was diagnosed with BOT and so far have shined victorious. That's no guarantee for the future but at least I feel as though I was able to fight the battle for what it was worth. I suppose I would do it again if recurrence entered my future but everyone's case and situation is different. I guess one can only make their own individual case and hope we make the right one.

Bill D.


Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
Joined: Feb 2007
Posts: 1,940
"OCF across the pond"
Patient Advocate (1000+ posts)
Offline
"OCF across the pond"
Patient Advocate (1000+ posts)

Joined: Feb 2007
Posts: 1,940
The hospice Robin was in has PAT dogs,their owners brought them around about three times a week,and they just snuggle up and wag their tails while you stroke them.They didnt come near Robins room because we had the haridan from hell with us (our jack russell) and she is very territorial lol


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Joined: Nov 2005
Posts: 306
Tom J Offline OP
Platinum Member (300+ posts)
OP Offline
Platinum Member (300+ posts)

Joined: Nov 2005
Posts: 306
Good counsel from everyone. There are no clear answers. I spent some time with my grandkids today and it made my heart ache that I might not get to see them get much older. I am remodeling our house and there is now a sense of urgency about getting it done.... All the junk in my shop appeared to me today, and I decided I should sort through it and thin it out so my kids don't have to mess with it when.... Don't get me any Christmas presents, because whatever it is I won't be able to .... All very calm.

The interesting thing is, I have decided to fight back. Strange that all my mortality stuff is coming up AFTER I have decided to battle on! Go figure. No sense buying new shoes, no sense renewing the magazines I enjoy, no sense upgrading the cell phone contract, etc. Interesting thoughts. It doesn't feel dark or scary, just 'being practical'!!

Of all the things I've lost, I miss my mind the most!! Does anyone else ever have the "mortality heebie jeebies"? Tom J


SCC BOT, mets to neck, T4.
From 3/03: 10wks daily multi-drug chemo,
Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.
Joined: Feb 2007
Posts: 1,940
"OCF across the pond"
Patient Advocate (1000+ posts)
Offline
"OCF across the pond"
Patient Advocate (1000+ posts)

Joined: Feb 2007
Posts: 1,940
Good Lord Tom everyone has them wether they have an illness or not.

I had a terrible time with fear of dying,when i first became a nurse 30 years ago.At 18 and completely untouched by it ,i suddenly found myself surrounded .I would wake up in the night shaking and sweating i was scared to close my eyes,even these days when i get in the car to go on a long journey,it enters my mind .As for tomorrow,the thought of getting on a plane is shaking me rigid.
The worst part of the realisation for me was the fear of anything happening to my family.

So yes the heebie jeebies are a part of life i think but how someone copes with a time scale to that just escapes me.Robin never blinked an eyelid,and stayed that way for the whole three weeks he was in the hospice .It was astounding.

I guess when the fact becomes a reality some of the drugs used take the edge off the fear factor,and if you ever decide to go looking for your mind,see if you can find mine while you are at it.!!!

love liz


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Joined: Sep 2006
Posts: 1,357
Likes: 5
"OCF Canuck"
Patient Advocate (1000+ posts)
Offline
"OCF Canuck"
Patient Advocate (1000+ posts)

Joined: Sep 2006
Posts: 1,357
Likes: 5
You are so expressive Tom, and help me realize I am not alone in my wierd thoughts.

For me, my questions have been about whether it is worth getting new clothes, or new glasses, or buying something that my husband might not want to deal with.

Then part of me fights back. Cancer is a THIEF. When cancer is able to steal even a part of THIS day with such thoughts, as well as the others it has/will take with treatments and appointments and feeling unwell, then I realize that I cannot let that happen. We have to continue to live our lives as normally as possible (assuming no lotto wins!).

We cannot let Cancer steal more time from us than it already has. THIEF!!

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Joined: Apr 2005
Posts: 2,219
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Apr 2005
Posts: 2,219
Atta boy, Tom. I love to see a good fight.

Jerry


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
Great, Tom! And we are in there fighting right alongside you!

Donna - I really love the way you put this: "We cannot let Cancer steal more time from us than it already has. THIEF!" I'm putting it my unforgettable file. I think it can apply to other situations or hurts in life as well. It emhasizes for me the importance of fighting to block out the negatives and creating joy whenever and wherever we can - and not "sweating the small stuff".


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Tom & Donna,

This web site is devoted to fighters and we have told more than one to stop wasting our time if all they wanted to do was give up before there was no other option.

We will be with you and we will fight right along side of you and we know that we have a great chance of wining your battle because we have done it many, many times before.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Aug 2006
Posts: 294
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Aug 2006
Posts: 294
Tom,

You may now move forward and purchase/plant small shrubbery and green bananas.

Bill D.


Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
Page 3 of 4 1 2 3 4

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
iMarc845, amndcllns01, Jina, VintageMel, rahul320
13,105 Registered Users
Forum Statistics
Forums23
Topics18,170
Posts196,933
Members13,105
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5