#34936     02-01-2007 01:38 AM      |       Joined:  Apr 2004  Posts: 837    "Above & Beyond" Member (300+ posts)   |           "Above & Beyond" Member (300+ posts)    Joined:  Apr 2004  Posts: 837  |    Just to follow up on Amy's post (since the phrase "loss of weight from radiation" came from my post up above) -- I have to agree with Amy that it's not totally within your control.  When I went through radiation, I was 39 and in otherwise excellent health and was warned well in advance by my RO about the potential for weight loss.  I told him I was going to be different -- that I never miss a meal and I was going to tough it out and do whatever it took to keep my weight up.  I'm a good cook, and I took it as a challenge to try to find ways to come up with nutritious meals that were soft (tending toward semi-liquid) that would meet my calorie quota.  When I needed more calories beyond that, I had plenty of Carnation Instant Breakfast to supplement it.  Contrary to the experiences of many others here, I don't think I ever had to fight nausea during my treatment, although I had plenty of "hacking up" bad stuff that came with radiation.
  My weight pre-treatment was somewhere around 128-130; at the end of radiation my low was around 112.  Based on what I've read here, I think that's not too bad, and I can't claim that I looked emaciated by the time it was over, but it was definitely enough to be a noticeable change for people who knew me well.
  Cathy        
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#34937     02-01-2007 02:24 PM      |       Joined:  Nov 2005  Posts: 1,128    Patient Advocate (1000+ posts)   |           Patient Advocate (1000+ posts)    Joined:  Nov 2005  Posts: 1,128  |    I stand corrected!
  I was basing my statement on only my own experience (in which the actual cancer had been already removed by surgery prior to radiation) and no concurrent chemo.
  I certainly got the impression from the nurses that I was the one controlling my weight, and it would be by the calories I poured down the tube (presuming I retained them), but perhaps they screen out the folks whose circumstances wouldn't allow them to do that as not being candidates for the Amifostine.
  In my case, when I followed the dietician's instructions to a T, I retained my weight and when I later cut somewhat back on the number of bottles/calories, I slowly lost weight.        
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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