#3327 08-16-2004 06:33 PM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Brian,
I'll do whatever you need me to. I'm close by you so just give me a call whenever you need to. I think I gave you my cell number a while back. If you need it again send me a private message.
Dani
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#3328 08-16-2004 11:37 PM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | Brian,
I'd like to lend a hand here. I'm not good with talking to people as I'm still working on my speaking ability and am still hesitant to talk to people over the phone (unless it's family). But, I'm good on the computer and could certainly lend a hand getting the word out that way. Please count me in.
Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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#3329 08-17-2004 09:23 AM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | OK, Brian, count me in, I`ve done my best to put the bad parts of disease behind me. It doesn`t seem possible that Packer will be gone 6 months. I never thought life would ever brighten up, but the universe always seems to have surprises for us.I have a beautiful new life, getting married in a couple weeks,in a cemetery, which seems appropriate to my new outlook on life.........live every day like it`s your last. And the universe does take care of us........I did my very best to care for Frank and walk by his side, I have no regrets about any of the 6 years we battled this crap,I thought I could turn my back on oral cancer and put it all behind me, but guilt reared it`s ugly head, there is too much I can do to help yet, so,Brian, whatever you need, let me know..........Dee | | |
#3330 08-17-2004 10:18 AM | Joined: Aug 2004 Posts: 217 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Aug 2004 Posts: 217 | Again, this is all new to me, but I am experiencing a consuming need to be on this amazing website - and as much of a novice as I am to what you all have experienced, I would love to help in whatever capacity you need in the Northern Virginia area. It would seem I will be very busy taking care of Tom in the coming months, but I'll help in whatever way you need. Computer/doctor-dentist visits/writing or editing.....please let me know! I am taking this website address with me to the cancer center at UVA next week to post, and I'll make sure Tom's doctors know about it - if they don't already!
Thank you again - all of you - for providing such hope and inspiration to Tom and me
Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
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#3331 08-17-2004 02:43 PM | Joined: Oct 2003 Posts: 52 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Oct 2003 Posts: 52 | Brian,
I will do anything I can. Marcy said I should be her spokesperson since she had to leave us.
I was with her from the first diagnosis to the third reoccurance, I learned a few things along the way.
Warrior in Wisconsin,
Michelle
Michelle, sister to Marcy
Dx January 03, partial glossectomy/selective neck dissection T2N1MO/recurrence June 03, radiation and chemo/recurrence Dec. 03 mets to spine and base of skull//palliative care//lost her April 10th 2004 Age of 32
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#3332 08-18-2004 02:27 AM | Joined: Mar 2003 Posts: 18 Member | | Member
Joined: Mar 2003 Posts: 18 | I would love to offer my services
I am availbale most days between 8am and 4pm EST
Please let me know
Bob | | |
#3333 08-22-2004 03:59 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Some of you have not sent me your contact information, and as a result I have not sent you the password to the volunteer forum. Just a reminder that we are begining our outreach programs and could use all the help we can get. If you have a few hours you can spend helping OCF, please contact me with our name and address and phone. Please do not post that info here.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#3334 08-24-2004 07:27 AM | Joined: Feb 2004 Posts: 162 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2004 Posts: 162 | Hey Brian. I sent you a private note August 19th with my contact info. I know you're a busy guy, but I wanted to let you know I'm still standing by.
-Brett
Base of Tongue SCC. Stage IV, T1N2bM0. Diagnosed 25 July 2003.
Treated with 6 weeks induction chemo -- Taxol & Carboplatin once a week followed with 30 fractions IMRT, 10 fields per fraction over 6 more weeks. Recurrence October 2005.
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#3335 08-24-2004 04:19 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Brett I didn't get it, please send it again, don't forget the obvious, last name, email addres etc. I will send you a copy of the current group and password.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#3336 08-24-2004 05:15 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Brian,
I cannot open up the file you sent for us to check our information. Not sure why.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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