#32877 05-18-2003 03:28 AM | Joined: Jan 2003 Posts: 95 Senior Member (75+ posts) |  Senior Member (75+ posts)
Joined: Jan 2003 Posts: 95 | To all
I chose this site to add something for anyone dealing with this horrendous disease. Mostly for Brian's effort to bring us all together. You all have been my support system and info source since my husband diagnosis in Nov. Brian left a post on activism which I had to reply to. Brian, your work for this site has been amazing. How anyone can go through this disease and come out with such a helping attitude amazes me. My thanks is not near enough for what you've done. We all have moments of disagreeing, that's what makes us alive.
Please don't stop what your doing . It helps us all have hope.
Diane | | |
#32878 05-18-2003 01:03 PM | Joined: Dec 2002 Posts: 235 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Dec 2002 Posts: 235 | Diane, I couldn't agree more. Reaching out to you and anyone else who needs one - a BIG cyber hug!! 
DonnaJean
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#32879 05-26-2003 03:17 AM | Joined: May 2003 Posts: 58 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: May 2003 Posts: 58 | Packer - Leaders are determined by the way they respond to challenges and cheap shots. I strive to be the leader you already are. Amy
Amy
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#32880 06-17-2003 05:31 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Folks,
Something happened this evening that I have to share. Those of you who have been regular here know I have three boys 16, 12, and 7. Tonight we were working on the garden when the two older boys found two baby birds on the ground. These birds were obviously too young to be out of the nest and were too small to attempt feeding ourselves. The youngest son came upon the scene and obviously was troubled by the delemma. I rather matter-of-factly explained to all of them that the mother bird was the only one who could help them. We made up a nest and set the two birds in it then placed it where I hoped no cat would find.
The whole event was out of my mind until at dusk (while we were still working on the garden) the youngest boy came around the corner and when he looked up, saw the first evening star. He immediately and mostly silently started to make a wish...almost as a prayer for those birds to be given a second chance.
I don't think he knew I could hear him and I am very glad he didn't see me. You know I was in tears...I imagined how many stars he had been wishing on for me, his dad, over the last two + years...for all I know that is why I am still here.
I hope the mommy bird comes back tommorrow....I do not know what I will tell him if she dosen't
What I can still do....cry
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#32881 06-18-2003 01:53 AM | Joined: May 2003 Posts: 58 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: May 2003 Posts: 58 | Thanks Mark. You owe me a tube of mascara! What a sweet little boy!
Amy
Amy
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#32882 06-18-2003 06:38 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | That is incredibly beautiful Mark. I can still cry too. Thank you for sharing it.
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#32883 06-18-2003 01:25 PM | Joined: Dec 2002 Posts: 235 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Dec 2002 Posts: 235 | Now you did it Mark...you got everyone crying with that beautiful, touching story! Ditto to what Amy said....he sounds like a sweet little boy! Did the mommy-bird ever come back? And while you're buying Amy a tube of mascara - might as well pick one up for me too! Thanks again for sharing....that was lovely.
DonnaJean
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#32884 06-19-2003 10:16 AM | | Anonymous Unregistered | | Anonymous Unregistered
| Mark,
I wish there were more people of any age in this world like your 7 year old. Think what a wonderful man he'll grow to be (maybe like his Dad?)
Thanks for sharing,
Dinah | | |
#32885 06-26-2003 07:03 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Thank you all for your kind and heartfelt words! I have had several things worthy of posting since the Bird incident. First I have been on a short vacation near the Canadian border in Canoe country with my family. Second on Thursday last I had a checkup with the ENT and he thinks I am doing fine, it's 28 months now! Last (for now) Mommy bird did not come back. One of the two birds died, we think because of injuries from the fall out of it's nest.  The GOOD news is the other baby bird is doing quite well eating $2.00 per day of worms. He/she has grown remarkably big in the last week and the boy's have adopted him/her with the name Charley.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#32886 06-28-2003 06:10 AM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Mark, Congratulations on your check-up! 28 months is great! Here's wishing you many more!!!  Rainbows & hugs,  Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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