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Re: I need your help #2452
05-10-2004 11:25 AM
05-10-2004 11:25 AM
Joined: Mar 2002
Posts: 102
Mississippi
J
Julie Offline
Senior Member (100+ posts)
Julie  Offline
Senior Member (100+ posts)
J

Joined: Mar 2002
Posts: 102
Mississippi
That is awesome news!! I sent a thank you! And here's to many, many "Thanks yous" to you! You're the best!


Julie
Wife to Kelly
SSC tonsil Stage IV
July 2000
Re: I need your help #2453
05-10-2004 11:42 AM
05-10-2004 11:42 AM
Joined: Sep 2002
Posts: 642
Houston, Texas
D
digtexas Offline
"Above & Beyond" Member (500+ posts)
digtexas  Offline
"Above & Beyond" Member (500+ posts)
D

Joined: Sep 2002
Posts: 642
Houston, Texas
Brian,
Congratulations! I sent Mr. Pellico a note thanking him. All of your hard working over the past several years is now bearing fruit.
Keep up the good work and stay well...

Danny G.


Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
Re: I need your help #2454
05-10-2004 12:35 PM
05-10-2004 12:35 PM
Joined: Jul 2003
Posts: 1,163
Kaukauna, Wisconsin
D
Daniel Bogan Offline
Patient Advocate (1000+ posts)
Daniel Bogan  Offline
Patient Advocate (1000+ posts)
D

Joined: Jul 2003
Posts: 1,163
Kaukauna, Wisconsin
Thank You Brian & Ingrid!!!! The email has been sent!!

Dan


Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.

Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06

Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
Re: I need your help #2455
05-10-2004 03:13 PM
05-10-2004 03:13 PM
Joined: Mar 2002
Posts: 234
Wilmington, Delaware
Y
youngerag Offline
Platinum Member (200+ posts)
youngerag  Offline
Platinum Member (200+ posts)
Y

Joined: Mar 2002
Posts: 234
Wilmington, Delaware
Brian,

All I can say, this wouldn't have happened without all of your's and Ingrid's effort.

Anne


Anne G.Younger
Life has never been better.
Re: I need your help #2456
05-11-2004 12:45 AM
05-11-2004 12:45 AM
Joined: Dec 2003
Posts: 2,606
Atlanta
U
Uptown Offline
Patient Advocate (old timer, 2000 posts)
Uptown  Offline
Patient Advocate (old timer, 2000 posts)
U

Joined: Dec 2003
Posts: 2,606
Atlanta
Brian,

After sending the note to Mr Pellico I realized I have not taken the time to personally express my gratitude and appreciation for what you have made possible for me and all of us. It is leadership as you exhibit that has made this country what it is and as long as someone steps up to make a difference, our greatness will come to fruition. May we all have the courage and tenaciousness to use our experiences in life to make a difference in those that travel this world after us!

Ed


SCC Stage IV
BOT primary
T2N2bM0
Cisplatin/5FU x 3
40 days radiation at 4 sites
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
PLS 02/13
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/
Osteoporosis 01/2018
Heart attack 06_2018

Living life LARGE with no quit in this guy!
Re: I need your help #2457
05-11-2004 04:36 AM
05-11-2004 04:36 AM
Joined: Mar 2003
Posts: 1,377
Minnesota, land of 10,000 taxe...
M
Mark Offline
Patient Advocate (1000+ posts)
Mark  Offline
Patient Advocate (1000+ posts)
M

Joined: Mar 2003
Posts: 1,377
Minnesota, land of 10,000 taxe...
Ditto the above sentiments, I sent my e-mail to Mr. Pellico this morning.


Mark, 19 Years survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
Re: I need your help #2458
05-11-2004 05:16 AM
05-11-2004 05:16 AM
Joined: Apr 2004
Posts: 143
Maine
P
PackersVoice Offline
Gold Member (100+ posts)
PackersVoice  Offline
Gold Member (100+ posts)
P

Joined: Apr 2004
Posts: 143
Maine
Gee, Brian, I reread your post from yesterday, thanked you Ingrid, have sent big thanks to Mr. Pellico this morning...........Dee

Re: I need your help #2459
05-11-2004 06:12 AM
05-11-2004 06:12 AM
Joined: Oct 2002
Posts: 546
Pennsylvania
R
rosie Offline
"Above & Beyond" Member (500+ posts)
rosie  Offline
"Above & Beyond" Member (500+ posts)
R

Joined: Oct 2002
Posts: 546
Pennsylvania
Brian,

That is absolutely wonderful news. I'm so glad for you and, although you probably won't, I think you should sit back and take a bit of a breather. You deserve a little rest and relaxation. My thank you to Mr. Pellico will be sent today.

Take care,
Double rainbows & hugs, wink
Rosie


Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
Re: I need your help #2460
05-11-2004 07:29 AM
05-11-2004 07:29 AM
Joined: Mar 2004
Posts: 164
Grand Prairie TX
L
Lynn Offline
Gold Member (100+ posts)
Lynn  Offline
Gold Member (100+ posts)
L

Joined: Mar 2004
Posts: 164
Grand Prairie TX
Brian,

I sent a note to Mr. Pellico Monday. I also attended a SPOHNC meeting today and told everyone about this website. SPOHNC only meets once a month and sometimes I needed support more than once a month and no one there had exactly the same issues I had. This site has been so great for me. I can be here at 2:00 a.m. and browse around and feel better about my situation.

Thanks so much for your support and giving spirit. I will forever by grateful.

Lynn


Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
Re: I need your help #2461
05-11-2004 08:05 AM
05-11-2004 08:05 AM
Joined: Mar 2002
Posts: 234
Wilmington, Delaware
Y
youngerag Offline
Platinum Member (200+ posts)
youngerag  Offline
Platinum Member (200+ posts)
Y

Joined: Mar 2002
Posts: 234
Wilmington, Delaware
Brian,

Neglected to mention in my previous post, I sent my thanks to Mr. Pellico last night. I agree with Rosie; but knowing you, you won't slow down. This will only spur you on.

Thanks again.

Anne


Anne G.Younger
Life has never been better.
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