#2452 05-10-2004 12:25 PM | Joined: Mar 2002 Posts: 102 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Mar 2002 Posts: 102 | That is awesome news!! I sent a thank you! And here's to many, many "Thanks yous" to you! You're the best!
Julie
Wife to Kelly
SSC tonsil Stage IV
July 2000
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#2453 05-10-2004 12:42 PM | Joined: Sep 2002 Posts: 642 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2002 Posts: 642 | Brian,
Congratulations! I sent Mr. Pellico a note thanking him. All of your hard working over the past several years is now bearing fruit.
Keep up the good work and stay well...
Danny G.
Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
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#2454 05-10-2004 01:35 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Thank You Brian & Ingrid!!!! The email has been sent!!
Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#2455 05-10-2004 04:13 PM | Joined: Mar 2002 Posts: 234 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Mar 2002 Posts: 234 | Brian,
All I can say, this wouldn't have happened without all of your's and Ingrid's effort.
Anne
Anne G.Younger
Life has never been better.
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#2456 05-11-2004 01:45 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Brian,
After sending the note to Mr Pellico I realized I have not taken the time to personally express my gratitude and appreciation for what you have made possible for me and all of us. It is leadership as you exhibit that has made this country what it is and as long as someone steps up to make a difference, our greatness will come to fruition. May we all have the courage and tenaciousness to use our experiences in life to make a difference in those that travel this world after us!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#2457 05-11-2004 05:36 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Ditto the above sentiments, I sent my e-mail to Mr. Pellico this morning.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#2458 05-11-2004 06:16 AM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | Gee, Brian, I reread your post from yesterday, thanked you Ingrid, have sent big thanks to Mr. Pellico this morning...........Dee | | |
#2459 05-11-2004 07:12 AM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Brian, That is absolutely wonderful news. I'm so glad for you and, although you probably won't, I think you should sit back and take a bit of a breather. You deserve a little rest and relaxation. My thank you to Mr. Pellico will be sent today. Take care, Double rainbows & hugs,  Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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#2460 05-11-2004 08:29 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Brian,
I sent a note to Mr. Pellico Monday. I also attended a SPOHNC meeting today and told everyone about this website. SPOHNC only meets once a month and sometimes I needed support more than once a month and no one there had exactly the same issues I had. This site has been so great for me. I can be here at 2:00 a.m. and browse around and feel better about my situation.
Thanks so much for your support and giving spirit. I will forever by grateful.
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#2461 05-11-2004 09:05 AM | Joined: Mar 2002 Posts: 234 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Mar 2002 Posts: 234 | Brian,
Neglected to mention in my previous post, I sent my thanks to Mr. Pellico last night. I agree with Rosie; but knowing you, you won't slow down. This will only spur you on.
Thanks again.
Anne
Anne G.Younger
Life has never been better.
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