#2293 04-15-2004 12:54 PM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | OP  Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | I have felt terrible the last few days, so I haven't posted in a while. The biospy came back positive for SCC in the lungs as I had feared. Not very many treatment options available. Two offered up with only a 10-20% effective rate. No cure just a reduction in tumor growth. I have decided no more treatment for me. I am trying some nutritional things along with some supplements. I was away from my family for 2 months in search of the best treatment at MDACC, and look where I am. I don't think I want to spend anymore time away from them in search of the panacea for this disgusting disease. Don't look at it as giving up, I feel I am surrendering to God's will. This cancer has reoccurred so fast in such a short period of time that I am beginning to feel like the cancer has a purpose and that purpose is to take me home. Sorry if this sounds too morbid, but it's how I feel. My family is supportive, but also hopeful that I'll have some continued good days. We're still praying for a cure, but it may be the ultimate cure for me that God has in mind.
Thanks for all your support!
Still hopeful,
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#2294 04-15-2004 01:11 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | God bless you Lynn - you'll be in my daily prayers, as well as your family.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#2295 04-15-2004 01:44 PM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Oh Lynn,
I have been praying so hard for no mets in the lungs for you. As we have discussed before, God has a plan for our lives, but it is a hard one when we might think it's to go home so early in life. I will pray that God allows a miracle in your life to take away this cancer. Please feel free to email me anytime...you are in my prayers everyday, along with your family!
Love and prayers,
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#2296 04-15-2004 02:30 PM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | Lynn
Your decision is to be respected. Your statement "God's Will," is operative here. Meanwhile you have the love, respect, and prayers of my family and friends.
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#2297 04-15-2004 03:57 PM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 139 | Oh Lynn,
I admire your bravery in the face of the dread disease. I know you don't "feel" very brave but, trust me, you are. There is always hope.....remember that and know that you are in our prayers.
We love you
Judy U
Judy U
Stage I SCC floor of mouth, left radical neck dissection 8/03
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#2298 04-16-2004 01:13 AM | Joined: Apr 2002 Posts: 80 Likes: 1 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Apr 2002 Posts: 80 Likes: 1 | Lynn
I don't understand this terrible disease. It breaks my heart for you & your family. I know this guy here in Eastern NC that was told he had 6 months, he refused to believe the Dr. he believed in God, that was about 8 years ago and he is the 1st person I ran to after my cancer was found. I am suppose to be stage 4 and I am 3yrs. out. I do believe in prayer and was on prayer list all over the US and Canada. I will be praying for you and ask that my church and others keep you in their prayers.
JOAN
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#2299 04-16-2004 01:40 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Dear Lynn, God Bless You and Keep you, you are a brave person....I will keep praying for you, Keep Looking Up to Our Lord for peace. Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#2300 04-16-2004 04:12 AM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | may Buddha hold you in the Palm of his Hand......Love and Prayers................Dee | | |
#2301 04-16-2004 04:56 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Lynn,
Doctors have been known to be wrong...Joan is a perfect example... we will more than likely see you in Vegas.. keep the faith .. and may your God go with you.
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#2302 04-16-2004 04:57 AM | Joined: Jun 2002 Posts: 194 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2002 Posts: 194 | Bless you in all you do. I would choose to spend my time close to family and friends also.
gnelson, StageIV, cancer free since Nov.9,2000
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