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Joined: Jul 2013
Posts: 16
Danbert Offline OP
OP Offline

Joined: Jul 2013
Posts: 16
I've been absent from this forum for far longer than I intended. I was wanting to make a celebration post back in August when I hit my 10 year cancer free point, but life's distractions got the better of me. Today when the feelings started hitting hard I knew where I had to go.

When I joined this group ten years ago I was one of the younger patients at 29 years old, but a month later on this forum I met the family of an 18 year old who had the same diagnosis. Today marks the 9 year anniversary of her passing. So much has changed for me in those years. I now have 3 wonderful children, changed jobs a couple times, climbed the corporate ladder a bit at my current job. I feel like I'm in a good place in life, and she didn't get to experience any of it. They say grief comes in waves, but I was not expecting this tsunami today. I'm not really sure what I'm looking for here, maybe just a sounding board of people that would understand. Anyway, thanks for reading and the solidarity.


Stage 4 SCC on right underside of tongue

DX on 7/19/13 at age 29, no tobacco, light drinking

Partial Glossectomy/reconstruction/neck disection 8/20/13
Temp Trach, PEG tube

4/59 lymph nodes cancerous, 1 with extracapsular extension

Chemo - Cisplatin - 3 treatments started on 10/01/13
Radiation - 33 treatments started on 10/02/13
Joined: Jun 2021
Posts: 41
Likes: 6
Contributing Member (25+ posts)
Contributing Member (25+ posts)

Joined: Jun 2021
Posts: 41
Likes: 6
Hi Dan, thanks for sharing the thoughts. !0m years is a milestone. Congrads and hope the next 10 is as great

Has been quiet on the forum these days, stay well


72 yo
SCC 2009
Radiation/Chemo, clear 2010
Active triathlete
NPO and bad voice after 12 years
But doing great
Joined: May 2013
Posts: 183
Likes: 1
Senior Member (100+ posts)
Senior Member (100+ posts)

Joined: May 2013
Posts: 183
Likes: 1
Seems like we were both going through the treatments at the same time. I am now 10 years out and felt led to check up on the site. We should be grateful every day that we survived and not take a moment for granted. Live life to the fullest my friend.

Age 55 HPV 16+ SCC, BOT 050613 Stage IV
great team at OSU
Tx 6 weeks of rad started June 3
8 weeks of chemo started May 28
RTOG Phase III trial Cetuximab group.
Treatment completed 7/16/2013
PET Scan completed 10/08/13
Results discussed 10/11/13
NED - Free but am I
Next part of the journey?
1year PET 10/24/14 NED
Good reports now 10 years out.

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