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#200852 06-04-2021 09:19 AM
Joined: Jun 2021
Posts: 2
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Joined: Jun 2021
Posts: 2
Hello,

My husband was diagnosed with Stage IV SCC- we are getting ready to start chemo and rad therapy on Monday. He had a hemiglossectomy and bilateral dissection done 4/7. Post op infection surgery in 4/20 with wound vac. His first peg failed and still has an NG tube hoping the 2nd peg is good to go today. I know he has a long road ahead of him- joined in hopes to become the best caregiver I can be for him.

Last edited by Darlene3; 06-04-2021 10:30 AM.

Darlene Kearns
Darlene3 #200853 06-04-2021 11:36 AM
Joined: Oct 2012
Posts: 1,261
Likes: 4
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Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Oct 2012
Posts: 1,261
Likes: 4
Darlene,

I’m sorry about the situation you and your husband find yourselves in. There are many members here who have been on the cancer journey. Ask questions if you’re not sure about anything. There’s a good chance that someone will have an answer for you. Wishing you the best!


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
gmcraft #200857 06-07-2021 12:13 PM
Joined: Aug 2020
Posts: 44
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Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: Aug 2020
Posts: 44
Likes: 2
Darlene

Welcome to the group. The best suggestion I got was to take notes and journal. I went thru very similar as your husband. Getting my thoughts on paper gave me peace. Plus, i would keep a medical journal so i could get all my questions answered and keep track of my treatments and improvements.

At one point, I made up a matrix of recovery tasks (medicine, food, faith, meditation, sleep, exercise, etc). I would score myself every day on the different activities and give myself a treat for high scores. Kept me busy and feeling like i was making progress.

This group has been wonderful and helpful for me. Please ask whatever is on your minds.

Best
Nels


OC thriver, Tongue Stage IV, diag 3/12/20, surg 4/1/20, RT compltd 7/8/20

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