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Original Post (Thread Starter)
#200852 06/04/2021 4:19 PM
by Darlene3

My husband was diagnosed with Stage IV SCC- we are getting ready to start chemo and rad therapy on Monday. He had a hemiglossectomy and bilateral dissection done 4/7. Post op infection surgery in 4/20 with wound vac. His first peg failed and still has an NG tube hoping the 2nd peg is good to go today. I know he has a long road ahead of him- joined in hopes to become the best caregiver I can be for him.
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#200857 Jun 7th a 07:13 PM
by Nels

Welcome to the group. The best suggestion I got was to take notes and journal. I went thru very similar as your husband. Getting my thoughts on paper gave me peace. Plus, i would keep a medical journal so i could get all my questions answered and keep track of my treatments and improvements.

At one point, I made up a matrix of recovery tasks (medicine, food, faith, meditation, sleep, exercise, etc). I would score myself every day on the different activities and give myself a treat for high scores. Kept me busy and feeling like i was making progress.

This group has been wonderful and helpful for me. Please ask whatever is on your minds.

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