| | Joined: Jun 2021 Posts: 2 Member | OP  Member
Joined: Jun 2021 Posts: 2 | Hello,
My husband was diagnosed with Stage IV SCC- we are getting ready to start chemo and rad therapy on Monday. He had a hemiglossectomy and bilateral dissection done 4/7. Post op infection surgery in 4/20 with wound vac. His first peg failed and still has an NG tube hoping the 2nd peg is good to go today. I know he has a long road ahead of him- joined in hopes to become the best caregiver I can be for him.
Last edited by Darlene3; 06-04-2021 10:30 AM.
Darlene Kearns
| | | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | | Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Darlene,
I’m sorry about the situation you and your husband find yourselves in. There are many members here who have been on the cancer journey. Ask questions if you’re not sure about anything. There’s a good chance that someone will have an answer for you. Wishing you the best!
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| | | | | Joined: Aug 2020 Posts: 173 Likes: 52 Assistant Administrator Senior Member (100+ posts) | | Assistant Administrator Senior Member (100+ posts)
Joined: Aug 2020 Posts: 173 Likes: 52 | Darlene
Welcome to the group. The best suggestion I got was to take notes and journal. I went thru very similar as your husband. Getting my thoughts on paper gave me peace. Plus, i would keep a medical journal so i could get all my questions answered and keep track of my treatments and improvements.
At one point, I made up a matrix of recovery tasks (medicine, food, faith, meditation, sleep, exercise, etc). I would score myself every day on the different activities and give myself a treat for high scores. Kept me busy and feeling like i was making progress.
This group has been wonderful and helpful for me. Please ask whatever is on your minds.
Best
Nels
OC thriver, Tongue Stage IV, diag 3/12/20, surg 4/1/20, RT compltd 7/8/20
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