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| | Joined: Jun 2019 Posts: 244 Likes: 2 "OCF across the pond" Gold Member (200+ posts) | OP  "OCF across the pond" Gold Member (200+ posts)
Joined: Jun 2019 Posts: 244 Likes: 2 | After maintaining my weight by consuming the right amount of nutrition orally, my team dietician and speech therapist signed off the removal of my feeding tube. I was told I would be sent an appointment.
The following week I had a face to face appointment with my team and they surprised me with the removal of my tube. It's gone. No more. Happy days.
I also have a date, hopefully, to remove my PICC line from my arm (I had to have another one fitted when I got ill in March)
Sad news is that I will be made redundant at the end of July. Recruitment is hard with a speech impediment, but as long as I stay calm during a phone call I should be OK.
I hope you're all doing well.
F 39 x-smoker no alcohol
05/20/19 T4aN1/N2bM0 SCC a whopper of a tumour at 8cm long & 4cm wide
Pembro pre & post surgery
RIG
Glossectomy ND RFFR 08/13/19
RT x33
2x cispltin
So far, no evidence of disease
Now an author of a recipe book for mouth cancer patients
| | | | | Joined: Jun 2019 Posts: 62 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2019 Posts: 62 | Wooo whooo Dizz. What a relief right. So happy for you.
SSC Lt sublingual tongue; Age 62
Positive biopsy 20June2019
Staging done 2 Jul : Stage 1
Quit smoking 15 years ago; not a drinker; no HPV
Pet/ CT 6Jul2019 : Negative. Not even the Lt tongue lit up.
Partial Glossectomy 22Jul2019
| | | | | Joined: Aug 2018 Posts: 345 Likes: 8 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Aug 2018 Posts: 345 Likes: 8 | that is something to celebrate!
Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free
| | | | | Joined: Aug 2019 Posts: 22 Likes: 2 Member | | Member
Joined: Aug 2019 Posts: 22 Likes: 2 | Yay Dizzey! The hole in my stomach healed very quickly. I think I was swimming about 2 weeks later. Congrats!! Enjoy the rest of the Summer. | | | | | Joined: Jun 2019 Posts: 244 Likes: 2 "OCF across the pond" Gold Member (200+ posts) | | OP "OCF across the pond" Gold Member (200+ posts)
Joined: Jun 2019 Posts: 244 Likes: 2 | Thank you Mokie, Connie and Thankful Girl. It took 4 days for the hole to fully heal and I've enjoyed a long soak in a deeply filled bath. Bliss! Swimming pools should be opening up in the next couple of weeks. Not sure how it's going to work with social distancing still in place. Some zoos are open but you have to purchase your ticket in advance, so they might do that. We'll see. I have to buy a new swimsuit as I've lost a total of 38kg since Jan 2019.
Hope you are all doing well xx
F 39 x-smoker no alcohol
05/20/19 T4aN1/N2bM0 SCC a whopper of a tumour at 8cm long & 4cm wide
Pembro pre & post surgery
RIG
Glossectomy ND RFFR 08/13/19
RT x33
2x cispltin
So far, no evidence of disease
Now an author of a recipe book for mouth cancer patients
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