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#200208 06-18-2020 12:56 PM
Joined: Jun 2019
Posts: 237
"OCF across the pond"
Gold Member (200+ posts)
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"OCF across the pond"
Gold Member (200+ posts)

Joined: Jun 2019
Posts: 237
After maintaining my weight by consuming the right amount of nutrition orally, my team dietician and speech therapist signed off the removal of my feeding tube. I was told I would be sent an appointment.
The following week I had a face to face appointment with my team and they surprised me with the removal of my tube. It's gone. No more. Happy days.

I also have a date, hopefully, to remove my PICC line from my arm (I had to have another one fitted when I got ill in March)

Sad news is that I will be made redundant at the end of July. Recruitment is hard with a speech impediment, but as long as I stay calm during a phone call I should be OK.

I hope you're all doing well.


F 39 x-smoker no alcohol
05/20/19 T4aN1/N2bM0 SCC a whopper of a tumour at 8cm long & 4cm wide
Pembro pre & post surgery
RIG
Glossectomy ND RFFR 08/13/19
RT x33
2x cispltin
So far, no evidence of disease
Now an author of a recipe book for mouth cancer patients
Dizz_zzey #200209 06-19-2020 09:01 AM
Joined: Jun 2019
Posts: 62
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Joined: Jun 2019
Posts: 62
Wooo whooo Dizz. What a relief right. So happy for you.


SSC Lt sublingual tongue; Age 62
Positive biopsy 20June2019
Staging done 2 Jul : Stage 1
Quit smoking 15 years ago; not a drinker; no HPV
Pet/ CT 6Jul2019 : Negative. Not even the Lt tongue lit up.
Partial Glossectomy 22Jul2019
Mokie #200211 06-19-2020 06:39 PM
Joined: Aug 2018
Posts: 336
Likes: 1
Platinum Member (300+ posts)
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Platinum Member (300+ posts)

Joined: Aug 2018
Posts: 336
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that is something to celebrate!


Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free
Dizz_zzey #200212 06-20-2020 02:23 PM
Joined: Aug 2019
Posts: 21
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Posts: 21
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Yay Dizzey! The hole in my stomach healed very quickly. I think I was swimming about 2 weeks later. Congrats!! Enjoy the rest of the Summer.

Thankful Girl #200213 06-20-2020 03:35 PM
Joined: Jun 2019
Posts: 237
"OCF across the pond"
Gold Member (200+ posts)
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"OCF across the pond"
Gold Member (200+ posts)

Joined: Jun 2019
Posts: 237
Thank you Mokie, Connie and Thankful Girl. It took 4 days for the hole to fully heal and I've enjoyed a long soak in a deeply filled bath. Bliss! Swimming pools should be opening up in the next couple of weeks. Not sure how it's going to work with social distancing still in place. Some zoos are open but you have to purchase your ticket in advance, so they might do that. We'll see. I have to buy a new swimsuit as I've lost a total of 38kg since Jan 2019.

Hope you are all doing well xx


F 39 x-smoker no alcohol
05/20/19 T4aN1/N2bM0 SCC a whopper of a tumour at 8cm long & 4cm wide
Pembro pre & post surgery
RIG
Glossectomy ND RFFR 08/13/19
RT x33
2x cispltin
So far, no evidence of disease
Now an author of a recipe book for mouth cancer patients

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