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FNG Here #199992
03-28-2020 06:42 AM
03-28-2020 06:42 AM
Joined: Mar 2020
Posts: 3
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chutist747 Offline OP
Member
chutist747  Offline OP
Member
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Joined: Mar 2020
Posts: 3
FNG (friggin' new guy) here. I am post-op for SCC in the right tonsil. Tumor (stage 2, borderline stage 3) was removed by laser with good, but small margins and a neck dissection was also performed. 2 lymph nodes showed microscopic traces of cancer. I was hoping to avoid radiation, but the ENT is now recommending it.....awaiting his referral to a radiation oncologist. I am on the fence as to radiation, so I am going to wander over to the treatment forum for some insight. Cheers!

Last edited by chutist747; 03-28-2020 06:43 AM.
Re: FNG Here [Re: chutist747] #199994
03-28-2020 04:56 PM
03-28-2020 04:56 PM
Joined: Jun 2007
Posts: 10,499
PA
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ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Joined: Jun 2007
Posts: 10,499
PA
Welcome to OCF, chutist747! Sorry you have a need for our group! At the same time, its a very good thing you found us to help get you thru some upcoming difficult days. As a group of patients and caregivers, we have a different viewpoint than medical professionals, we've experienced oral cancer (OC) first hand.

Best wishes with your continued recovery.

Hang in there!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Re: FNG Here [Re: chutist747] #199996
03-29-2020 05:22 AM
03-29-2020 05:22 AM
Joined: Feb 2015
Posts: 92
Boston suburb
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tlc356 Offline
Supporting Member (50+ posts)
tlc356  Offline
Supporting Member (50+ posts)
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Joined: Feb 2015
Posts: 92
Boston suburb
Anything short of clean margins needs to be eliminated-that's my view of things.

If you look at the websites for some of the major cancer institutions I think you'll find a way to get an on-line second opinion. I believe I posted one in the general category for Dana-Farber Cancer Institute. If you can't find it or need more send me a private message.


SCC stage 1 Nov. '03,
SCC stage 2 (clear mrg, no rad, no chemo) RND, Feb. '15

TLC356
Re: FNG Here [Re: chutist747] #199997
03-29-2020 12:49 PM
03-29-2020 12:49 PM
Joined: Jan 2020
Posts: 50
Los Angeles, ca
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Kevster Offline
Supporting Member (50+ posts)
Kevster  Offline
Supporting Member (50+ posts)
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Joined: Jan 2020
Posts: 50
Los Angeles, ca
I sympathize with you. Started radiation following my surgery, and I too was desperately hoping to avoid radiation, which comes with nasty side effects. But the doctors would not have recommended it if they felt it would not significantly reduce your odds of recurrence. And I think it’s the same situation for you. It only takes one stray cancer cell to start multiplying and then you have have a recurrence, which means maybe another surgery and then definitely radiation. Recurrence is the worst possible outcome, worse than radiation. I would take the advice of the doctor.


Stage 3 cancer of right side of tongue
Tumor: t2.
Lymph nose spread
Partial glossectomy and neck dissection (2/12/20)
Never smoker
Completed six weeks of radiation on 5/6/20
Re: FNG Here [Re: Kevster] #199998
03-29-2020 12:49 PM
03-29-2020 12:49 PM
Joined: Jan 2020
Posts: 50
Los Angeles, ca
K
Kevster Offline
Supporting Member (50+ posts)
Kevster  Offline
Supporting Member (50+ posts)
K

Joined: Jan 2020
Posts: 50
Los Angeles, ca
I should add that I’m in radiation currently


Stage 3 cancer of right side of tongue
Tumor: t2.
Lymph nose spread
Partial glossectomy and neck dissection (2/12/20)
Never smoker
Completed six weeks of radiation on 5/6/20

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