Previous Thread
Next Thread
Print Thread
#199992 03-28-2020 07:42 AM
Joined: Mar 2020
Posts: 3
Member
OP Offline
Member

Joined: Mar 2020
Posts: 3
FNG (friggin' new guy) here. I am post-op for SCC in the right tonsil. Tumor (stage 2, borderline stage 3) was removed by laser with good, but small margins and a neck dissection was also performed. 2 lymph nodes showed microscopic traces of cancer. I was hoping to avoid radiation, but the ENT is now recommending it.....awaiting his referral to a radiation oncologist. I am on the fence as to radiation, so I am going to wander over to the treatment forum for some insight. Cheers!

Last edited by chutist747; 03-28-2020 07:43 AM.
chutist747 #199994 03-28-2020 05:56 PM
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
Welcome to OCF, chutist747! Sorry you have a need for our group! At the same time, its a very good thing you found us to help get you thru some upcoming difficult days. As a group of patients and caregivers, we have a different viewpoint than medical professionals, we've experienced oral cancer (OC) first hand.

Best wishes with your continued recovery.

Hang in there!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
chutist747 #199996 03-29-2020 06:22 AM
Joined: Feb 2015
Posts: 133
Likes: 7
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Feb 2015
Posts: 133
Likes: 7
Anything short of clean margins needs to be eliminated-that's my view of things.

If you look at the websites for some of the major cancer institutions I think you'll find a way to get an on-line second opinion. I believe I posted one in the general category for Dana-Farber Cancer Institute. If you can't find it or need more send me a private message.


SCC stage 1 Nov. '03,
SCC stage 2 (clear mrg, no rad, no chemo) RND, Feb. '15
SCC stage 1, lower gum Mar '23

TLC356
chutist747 #199997 03-29-2020 01:49 PM
Joined: Jan 2020
Posts: 51
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Jan 2020
Posts: 51
I sympathize with you. Started radiation following my surgery, and I too was desperately hoping to avoid radiation, which comes with nasty side effects. But the doctors would not have recommended it if they felt it would not significantly reduce your odds of recurrence. And I think it’s the same situation for you. It only takes one stray cancer cell to start multiplying and then you have have a recurrence, which means maybe another surgery and then definitely radiation. Recurrence is the worst possible outcome, worse than radiation. I would take the advice of the doctor.


Stage 3 cancer of right side of tongue
Tumor: t2.
Lymph nose spread
Partial glossectomy and neck dissection (2/12/20)
Never smoker
Completed six weeks of radiation on 5/6/20
Kevster #199998 03-29-2020 01:49 PM
Joined: Jan 2020
Posts: 51
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Jan 2020
Posts: 51
I should add that I’m in radiation currently


Stage 3 cancer of right side of tongue
Tumor: t2.
Lymph nose spread
Partial glossectomy and neck dissection (2/12/20)
Never smoker
Completed six weeks of radiation on 5/6/20

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,167
Posts196,922
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5