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#199284 10-19-2019 08:42 AM
Joined: Jul 2016
Posts: 34
Murphy Offline OP
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: Jul 2016
Posts: 34
Just had another surgery 8/23/19, tongue reconstruction and left radical neck dissection due to a new tumor on left side of tongue. Dr's said margins were clear and would not need chemo or additional rad treatments. From what I have been through I would not agree to chemo or rad treatments anyway. I am not going with anymore surgeries either..
Since I have been home from the hospital I have had sleeping problems, I was taking Ambien (1 1/2 years) before and during the hospital stay but did not seem to be working so good anymore. I went to my primary care physician yesterday and I got a new prescription for Temazepam 15mg, I slept pretty good last night with only 1 interuption during the night when before I was hardly sleeping at all.
My ENT was going to prescribe Valium for the occasional neck spasams that i get ( 1 morning it was so bad I could hardly move my neck) but we both forgot about it before I left. Now my primary care physician will not prescribe it with the sleeping pills. What can I do about the stiffness in my neck besides exercises and physical therapy ?
I was taking Cyclopenzaprine but it really didn't seem to be doing any good.
I do work with grinders, saws and other tools as well at home and i drive to. Maybe Valium would not be such a great idea.


5/31/16 Partial Glossectomy
Right neck dissection
22 teeth extracted
Six weeks of radiation Ended 8/19/16
2/8/17 Biopsy of epiglottis-cancerous
35 radiation treatments to the throat, End 11/17/17
8/23/19 Tongue reconstruction, left radical neck dissection
Murphy #199338 10-28-2019 03:25 AM
Joined: Oct 2017
Posts: 36
Likes: 2
Contributing Member (25+ posts)
Offline
Contributing Member (25+ posts)

Joined: Oct 2017
Posts: 36
Likes: 2
my neck still stiff after lots of physio-therapy, although bit better than before


T4aN2cM0 left tongue SCC 10/17
Moderately differentiated SCC
PEG, Trachy, glossectomy, en bloc neck dissection and reconstruction 11/17
Perineural invasion present
Radiation (IMRT) and Chemo ( 2xcispltn) completed 2/18
PET - NED 05/18
CT - NED 07/18, 10/18
CT - NED 02/19, 06/19
MRI H&N, X-ray chest - NED 10/19
MRI H&N NED 05/20
CT - NED 10/20
MRI - NED 04/21
CT - NED 10/21
CT - NED 4/22.10/22
CBCT - NED 10/22

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