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| Joined: Jul 2016 Posts: 34 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jul 2016 Posts: 34 | Just had another surgery 8/23/19, tongue reconstruction and left radical neck dissection due to a new tumor on left side of tongue. Dr's said margins were clear and would not need chemo or additional rad treatments. From what I have been through I would not agree to chemo or rad treatments anyway. I am not going with anymore surgeries either.. Since I have been home from the hospital I have had sleeping problems, I was taking Ambien (1 1/2 years) before and during the hospital stay but did not seem to be working so good anymore. I went to my primary care physician yesterday and I got a new prescription for Temazepam 15mg, I slept pretty good last night with only 1 interuption during the night when before I was hardly sleeping at all. My ENT was going to prescribe Valium for the occasional neck spasams that i get ( 1 morning it was so bad I could hardly move my neck) but we both forgot about it before I left. Now my primary care physician will not prescribe it with the sleeping pills. What can I do about the stiffness in my neck besides exercises and physical therapy ? I was taking Cyclopenzaprine but it really didn't seem to be doing any good. I do work with grinders, saws and other tools as well at home and i drive to. Maybe Valium would not be such a great idea.
5/31/16 Partial Glossectomy Right neck dissection 22 teeth extracted Six weeks of radiation Ended 8/19/16 2/8/17 Biopsy of epiglottis-cancerous 35 radiation treatments to the throat, End 11/17/17 8/23/19 Tongue reconstruction, left radical neck dissection
| | | | Joined: Oct 2017 Posts: 36 Likes: 2 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Oct 2017 Posts: 36 Likes: 2 | my neck still stiff after lots of physio-therapy, although bit better than before
T4aN2cM0 left tongue SCC 10/17 Moderately differentiated SCC PEG, Trachy, glossectomy, en bloc neck dissection and reconstruction 11/17 Perineural invasion present Radiation (IMRT) and Chemo ( 2xcispltn) completed 2/18 PET - NED 05/18 CT - NED 07/18, 10/18 CT - NED 02/19, 06/19 MRI H&N, X-ray chest - NED 10/19 MRI H&N NED 05/20 CT - NED 10/20 MRI - NED 04/21 CT - NED 10/21 CT - NED 4/22.10/22 CBCT - NED 10/22
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