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| | Joined: Jul 2016 Posts: 85 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Jul 2016 Posts: 85 | Saw my oncologist about two weeks ago for follow up on my extreme dry mouth and throat. He told me of a new prescription medication manufactured in Switzerland with no side effects.....except to the pocket as it is very, very expensive. It is called GelClair. He told me he would fill out the paperwork for a discount. I told him I would not qualify for low income but he wanted to send it in anyway.
About three days later I got a call from a national pharmaceutical company saying since the doctor wrote that my case was severe they called the manufacturer who told them to send me a 1 month supply with another 1 month refill. They overnighted the package and there was no cost to me at all. It is an amazing miracle !
The very thick gel comes in 1 dose packets that you mix with 1 to 2 tablespoons of water. I have a very small mouth so I mix it in the morning in a small container and can use it three times a day. Although I have not needed it more than twice a day. It tastes like black licorice to me. I have never had so much relief from the burning and pain! So, this two month supply will last me six plus months ! It can't get any better than this !
If you are experiencing a dry, burning mouth and throat please check with your oncologist about ordering this product.
If you need more info, let me know.
Last edited by Jo in NC; 02-23-2017 11:01 PM.
Sept 2002 Rt breast cancer no chemo or radiation.
March 2015 Rt tonsil cancer - walnut size lump rt side neck.
March 2015 Scan, biopsy confirm
March 2015 Port, G tube placed, 10 teeth removed.
July 2015 completed 5 chemo/35 radiations
Sept 2015 Cat Scan all clear
July 2016 G tube, port still in place
Ive had Thyroid "graves disease" and Lupus for many years.
4 kidney stone surgeries past 3 mo with over 100 stones still there !
*** Update... Jo passed away 12/20/17 ... RIP Jo ***
| | | | | Joined: Nov 2016 Posts: 59 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Nov 2016 Posts: 59 | hi Jo in NC...
thank you for sharing this information. but mostly... awesome for you getting relief and benefit!!Great oncologist for keeping abreast of new products and doing right by patients.
Ya think with us putting satelittes up , spaceships etc.... we could do better in producing substantial resources to help people with side effects and do so without other bad side effects or costs
sounds like a great product!
MrsW
Wife, RN and CG to husband 55 yo diagnosed with tonsillar /lymph nodes SCC HPV+ 11/9/16- PEG and Power Port 12/9/16. Treatment started 12/27 Cisplatin x7 and RAD x35 on 12/28/16. Trismus had gotten worse!
| | | | | Joined: May 2014 Posts: 17 Member | | Member
Joined: May 2014 Posts: 17 | Great Doctor. Glad you have found some relief. The only answer I get when I mention a problem is "your alive". I will definitely check into this. Thanks for sharing.
Surgical biopsy Jan.2014 diagnosed verrucas carcinoma, previously biopsied by oral surgeon in office diagnosed verrucas leukaplakia. Radiation 33 sessions 4 chemo. Jpeg March 2014, removed Dec 2014 when started drinking boost. Surgical biopsy Oct 2014 - Jan. 2015. no cancer
| | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 756 Likes: 1 | Jo in NC - GelClair has been around for over 10 years. I used it in 2006 post radiation, but it may have been new then. It did help! I tried just about every dry mouth and radiation ulcer medication on the market and this was one of the better ones. I'm glad that you are having success with it.
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
| | | | | Joined: Jul 2016 Posts: 85 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Jul 2016 Posts: 85 | Oh my ! I thought it was new! But it is pretty darn good stuff !
Sept 2002 Rt breast cancer no chemo or radiation.
March 2015 Rt tonsil cancer - walnut size lump rt side neck.
March 2015 Scan, biopsy confirm
March 2015 Port, G tube placed, 10 teeth removed.
July 2015 completed 5 chemo/35 radiations
Sept 2015 Cat Scan all clear
July 2016 G tube, port still in place
Ive had Thyroid "graves disease" and Lupus for many years.
4 kidney stone surgeries past 3 mo with over 100 stones still there !
*** Update... Jo passed away 12/20/17 ... RIP Jo ***
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