| |        |   |   |  |   |  Joined:  Nov 2014 Posts: 73 Supporting Member (50+ posts) |   | OP   Supporting Member (50+ posts) 
 Joined:  Nov 2014 Posts: 73 |  I've had treatment for a with both rad and chemo for bot. The worse pain is in my ear. It is constant and intense. A dr said  it's pressure from tumor, though he did not look at it. I suspect this is an ear infection going on at same time of treatment. I also have thick yellow Phlem which makes me think this.
 The ear pain is more intense than any other resulting pain from treatment.
 Has anyone else have this, am I alone. Any suggestions for relief.
 I am still able to swallow, I haven't had to use my peg yet. Although my throat is very sore the pain doesn't compare to the ear pain.
 
   T4,N2,MO SCC of the BOT hpv+
 Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015
 PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015
 Clear 4.9.2015 PET/CT H&N.
 11mm low SUV nodule RUL on lung PET/CT
 2nd PET 8.25.15 10+ numerous nodules bi later lungs
 9.9.15 Lung biopsy SCC Org BOT
 Avastin and Torisel clinical trial 11/15-3/16 MDA
 Home 5/23/16 Pet scan 50% growth & +SUV
 Opdivo  6/2016
 Synthroid 100 mcr
 Scan tumors shrinking
 Teeth decay 9/2016
 |  |  |   |   |   |  |   |  Joined:  Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |   |   Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) 
 Joined:  Jun 2007 Posts: 10,507 Likes: 8 |  If you are in pain, ask for pain meds.  It is detrimental to a patient to hurt.  If you already have pain meds and they arent working then talk to your doc to up the strength or give you something that will manage your pain.
 
  Christine
 SCC 6/15/07 L chk & by L molar both Stag I, age44  2x cispltn-35 IMRT end 9/27/07  -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma  2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years  very happy to be alive    |  |  |   |   |   |  |   |  Joined:  Apr 2014 Posts: 236 Gold Member (200+ posts) |   |   Gold Member (200+ posts) 
 Joined:  Apr 2014 Posts: 236 |  Larry
 Call your doctor to up the pain meds. It could be an infection but my guess its probably from the cancer. My mother suffers with sever pain in her ear also and its from the cancer. I had the call her doctor because she was taking Norco but it wasn't strong enough.  Her doctor ordered Oxycotin along with the Norco. Also you can ask for the pain patch that may help you also.
 
 As for the flem I know that is horrible also. It's also bad with my mom to. You can rinse your mouth with baking soda & salt or there is a prescription called Magic Mouth Wash. Call your doctor to order that if you don't have it yet. Nothing really makes it go away but you get some relief.
 
 Get well soon and stay positive
 Heidi
 
Last edited by sweetpe1; 11-23-2014 02:35 PM.
   Sweetpe
 Caregiver
 RE:My Mother
 Age 70
 Non Smoker
 SCC 3/4/2014 Left rear jaw
 Mandiblctmy 3/25/2014
 35RAD Completed on 06/03/2014
 MRI 9/3/2014
 25mm lobulated recurrence left mandible/floor of mouth carcinoma
 9/23/14 Salvage Surgery
 MET(s)
 9/23/14 Salvage Surgery Not Successful
 Chemo Recommended
 1st Round of Cisplatin Chemo Started 10/20/14
 Cisplatin stopped 11/20/14. Side affects to bad.
 Chemo started again 1/22/15 Carbo/Docetaxel
 Passed Away April 22,2015
 
 
 
 |  |  |   |   |   |  |   |  Joined:  Mar 2011 Posts: 1,024 "OCF Kiwi Down Under"  Patient Advocate (1000+ posts) |   |   "OCF Kiwi Down Under"  Patient Advocate (1000+ posts) 
 Joined:  Mar 2011 Posts: 1,024 |  The main presenting symptom for Kris was the extreme ear pain associated with his BOT cancer. So I think I agree with your doc that it is pressure from the tumour. If you had an ear infection I would expect you to have a temperature  and a purulent/pussy discharge from the ear canal.Listen to Christine. Get some pain meds from your doc.
 Hope you feel relief soon.
 Tammy
   Caregiver/advocate to Husband Kris age 59@ diagnosis
 DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
 PET 6/11 clear.
 R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
 Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc.  clear margins. All nodes negative for disease. PEG in.
 March 2017 -  5 years disease free. Woohoo!
 |  |  |   |   |   |  |   |  Joined:  Nov 2014 Posts: 73 Supporting Member (50+ posts) |   | OP   Supporting Member (50+ posts) 
 Joined:  Nov 2014 Posts: 73 |  Where is the best place to place patch?
   T4,N2,MO SCC of the BOT hpv+
 Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015
 PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015
 Clear 4.9.2015 PET/CT H&N.
 11mm low SUV nodule RUL on lung PET/CT
 2nd PET 8.25.15 10+ numerous nodules bi later lungs
 9.9.15 Lung biopsy SCC Org BOT
 Avastin and Torisel clinical trial 11/15-3/16 MDA
 Home 5/23/16 Pet scan 50% growth & +SUV
 Opdivo  6/2016
 Synthroid 100 mcr
 Scan tumors shrinking
 Teeth decay 9/2016
 |  |  |   |   |   |  |   |  Joined:  Mar 2011 Posts: 1,024 "OCF Kiwi Down Under"  Patient Advocate (1000+ posts) |   |   "OCF Kiwi Down Under"  Patient Advocate (1000+ posts) 
 Joined:  Mar 2011 Posts: 1,024 |  Hi Larry, anyplace on the upper body will be ok. Try the top third of your arms, under the collarbones/top of the chest, or on your back at the top . Rotating the sites  whenever you change the patch is also a good idea.Tammy
   Caregiver/advocate to Husband Kris age 59@ diagnosis
 DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
 PET 6/11 clear.
 R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
 Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc.  clear margins. All nodes negative for disease. PEG in.
 March 2017 -  5 years disease free. Woohoo!
 |  |  |   |   |   |  |   |  Joined:  Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |   |   Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) 
 Joined:  Jun 2007 Posts: 10,507 Likes: 8 |  Always put the patch on a new spot whenever you put a new one on.  I would alternate between upper arms, upper legs and the sides of my stomach.  Christine
 SCC 6/15/07 L chk & by L molar both Stag I, age44  2x cispltn-35 IMRT end 9/27/07  -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma  2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years  very happy to be alive    |  |  |   |   |   |  |   |  Joined:  Jul 2014 Posts: 5 Member |   |   Member 
 Joined:  Jul 2014 Posts: 5 |  Hi Larry, By husband also had ear pain with tonsil/bot HPV + SCC at time of dignosis.  Ear pain went away when treatment started (RAD and chemo). He's post treatment about a month and ear pain is back, along with intense jabbing pain at site of mouth ulcer. Doc scoped him and thinks the ulcer is infected (causing swelling and thus ear pain). Has taken antiboitics for 1 day and already the ear pain has gone away. Explore the possibility of infection.....   husband diagnosed with SCC, HPV 16+ Stage 2/3 in July 2014(tonsil, BOT, some soft palette)
 
 No nodal involvement
 
 Completed 36 Rad and 5 Chemo (CarboTax), Oct. 2014
 
 Underlying Leukemia (Chronic Lymphocytic Leukemia), Diagnosed Feb. 2013
 |  |  |   |   |   |  |   |  Joined:  Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) |   |   Patient Advocate (old timer, 2000 posts) 
 Joined:  Jul 2012 Posts: 3,267 Likes: 4 |  I had ear pain also from a cancerous lymph node, level ll, before starting radiation treatment, which was eventually controlled by the pain meds, and few weeks of radiation. Anytime there is pain or continued pain, doctors like to know. I also liked to put the Fetynal patch on my upper chest or shoulder area, with the date marked on it, so I could see it better, not double dose, know when to replace it. Follow prescribing precautions, discarding. These can easily be picked up by pets, or even stepped on after discarding if not careful.    10/09 T1N2bM0 Tonsil
 11/09 Taxo Cisp 5-FU, 6 Months Hosp
 01/11 35 IMRT 70Gy 7 Wks
 06/11 30 HBO
 08/11 RND PNI
 06/12 SND PNI LVI
 08/12 RND Pec Flap IORT 12 Gy
 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
 10/13 SND
 10/13 TBO/Angiograph
 10/13 RND Carotid Remove IORT 10Gy PNI
 12/13 25 Protons 50Gy 6 Wks Carbo
 11/14 All Teeth Extract 30 HBO
 03/15 Sequestromy Buccal Flap ORN
 09/16 Mandibulectomy Fib Flap Sternotomy
 04/17 Regraft hypergranulation Donor Site
 06/17 Heart Attack Stent
 02/19 Finally Cancer Free Took 10 yrs
 
 
 
 
 
 
 
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