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#178504 03-19-2014 05:23 PM
Joined: Aug 2013
Posts: 33
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Joined: Aug 2013
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So I am 12 rad treatments in and have 3 chemo done as well. I have been getting mouth sores but today had quite a bit of pain in one area near my tongue. When I looked in the mirror I see a slightly raised rather large white spot on my gum under my tongue. I am freaking out about it. I am terrified that it is cancer but thinking it could also be a sore from my treatments. Has anyone else ever had this kind of sore from treatments? I have radiation tomorrow and was going to have them check it out. I hate this frown Thank you for your help.

Theresa


Age 36
Mommy of 4 smile
Diagnosed 8/5-tongue cancer
T2 tumor with partial-glossectomy 8/13/13 along with neck dissection HPV positive
Path report all clear margins!
11/5/13- enlarged taste bud and mild Dysplasia
Surgery planned for 11/12
11/12 cancer cells removed
Staged increased to stage 3. T3N1
Chemo and rads started 3/4/14
33 rads and 6 chemo
Peg tube 3/7/14
37 radiation and 8 chemo treatments
Completed treatment 4/25/14
recurrence 12/1/15
surgery for Hemiglossectomy 12/11/15
Joined: Dec 2010
Posts: 5,264
Likes: 5
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
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It may be from the radiation. I would not worry too much but definitely have it looked at. If it is a cancer, chances are it's in the radiation path so it will get cooked. hugs.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Jun 2013
Posts: 262
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Posts: 262
Hi Theresa -- if it feels different than your other sores, it may be thrush. If it is, it's easily treatable. Hope your team can get you some relief today! Hang in there --

Lynn


53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
Joined: Oct 2011
Posts: 805
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Kevin had many mouth sores. Try not to worry and get answers tomorrow.


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
Joined: Jul 2012
Posts: 3,267
Likes: 4
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 4
Could be mucocitis, a fungal, bacterial or viral infection, a neutropenic ulcer, etc. As usual, show your doctor. Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Aug 2013
Posts: 33
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: Aug 2013
Posts: 33
Thank you so much! I appreciate all of your support. I am off to radiation in a bit so I an sure I will get an answer soon!


Age 36
Mommy of 4 smile
Diagnosed 8/5-tongue cancer
T2 tumor with partial-glossectomy 8/13/13 along with neck dissection HPV positive
Path report all clear margins!
11/5/13- enlarged taste bud and mild Dysplasia
Surgery planned for 11/12
11/12 cancer cells removed
Staged increased to stage 3. T3N1
Chemo and rads started 3/4/14
33 rads and 6 chemo
Peg tube 3/7/14
37 radiation and 8 chemo treatments
Completed treatment 4/25/14
recurrence 12/1/15
surgery for Hemiglossectomy 12/11/15

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