| | Joined: Jun 2013 Posts: 262 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Jun 2013 Posts: 262 | Friend of a friend of a friend: Hi! Is it true you can't eat? That is so sad!
Me: Oh, I can eat quite a few things now. In fact I just started eating oatmeal again today.
FoFoF: Then wake up every day grateful you can eat oatmeal. And if you feel bad, just remember, 'Hey! At least I get to eat oatmeal!'
Me: Okay, then you can wake up every day grateful I don't THROAT PUNCH YOU. (Laughs)
--------------------
Just between you and me? I wasn't really joking.
Last edited by Mamacita; 03-19-2014 07:11 AM.
53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
| | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | Excellent. Can I punch the FoFoF too?
(disclaimer: I've never punched anybody in my life but I'm willing to learn for this jerk)
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Nov 2013 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Nov 2013 Posts: 104 | Congrats on the Oatmeal! Maple and brown sugar Cream of Wheat was my staple for 2 weeks. Most know what an accomplishment eating a new(post treatment) food is.
I know you felt like tuning this guy with a tu-ba-fore...
Brian
Stage IV TxN2aM0 HPV+ SCC 38 y.o. male
9/20/13 Sentinel Node Found
12/5/13 Start of 72Gy and 5 bags of Cisplatin
1/21/14 Treatment Ends
1/25/15 1 Yr clear
| | | | | Joined: Jun 2013 Posts: 262 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Jun 2013 Posts: 262 | Thanks David, Thanks Brian. I don't know how to punch anyone either, but if I ever decide to I'm sure there's a YouTube tutorial 
53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | Some people never cease to amaze me. It's those that have have no real ills or suffering that say things can always be worse, and be thankful for that, otherwise they wouldn't say anything, and would be more empathetic. That friend of a friend of a friend is no friend of yours.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | That line about - things could be worse - was a comment my son received when he felt he was already feeling the very worse possible. I made sure that anyone I talked to would know not to mention it to him. I always remember this little story: One day as I walked out of church, feeling sad and lonely, someone tapped my shoulder and said - Cheer up, things could be worse - And so I did, I cheered up! And sure enough things got worse. Moral of this story: TCBW only makes things worse.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 4 | And what the heck do you have against oatmeal? just teasing. Some people are just plain condescending. As for oatmeal... It's gross without sugar I minimize my sugar intake and frankly my sugar taste isn't great so, basically it's like wallpaper paste to me... Ack!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Nov 2013 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Nov 2013 Posts: 104 | Mamacita, a tu-bah-fore is a 2x4, found in the construction materials section of your local Lowes/HomeDepot. No training required
Brian
Stage IV TxN2aM0 HPV+ SCC 38 y.o. male
9/20/13 Sentinel Node Found
12/5/13 Start of 72Gy and 5 bags of Cisplatin
1/21/14 Treatment Ends
1/25/15 1 Yr clear
| | | | | Joined: Feb 2014 Posts: 10 Member | | Member
Joined: Feb 2014 Posts: 10 | I know my husband would agree with every one of you. He is still blending soups. His diet consists of soups, yogurts, Ensure, puddings and more of the same. He just in the last couple of days is experimenting (not like him) with fish. I found that saut�ing cod or flounder fillets in butter and garlic goes down well. Small steps but progress. He never liked oatmeal anyway.
Vicki caregiver to incredible man
survivor of several partial glossectomies, jawbone removal, 2 courses of chemo/radiation-2009 and most recently Jan14
| | | | | Joined: Apr 2013 Posts: 319 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2013 Posts: 319 | Hi Mamacita,
Every morning I fix a bowl of oatmeal with a fistful of crushed walnuts, another fistful of Craisins (sweetened dried cranberries) and a small spoon of Splenda.
I'm not wild about it, but it's easy on the stomach and the walnuts provide my daily Omega-3 fat ration while the craisins provide something for my prostate. On top of that, it seems to help settle my stomach (which has lately been a tad touchy from the rads.)
The biggest benefit for me is that it doesn't aggravate the constant nausea, so that's a huge plus for me. Right now, there's not much else that works as well. But on the other hand, this nausea is transient and in a couple of weeks should be done with me.
In the meanwhile, waiting for the nausea to finish with me and move on, I can see I'll have time to work on my "snappy rejoinder" file.
I like yours to the IFoFoF (Idiot friend of a friend of a friend.) You go Girl!
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
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