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zengalib #167884 07-14-2013 02:10 PM
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Just goes to show that we need to pay attention to what we are taking, particularly with the issues that we already have to deal with.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
zengalib #167889 07-14-2013 04:16 PM
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Yeah, sure seems like that. I guess once an OC patient, always an OC patient.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #167896 07-14-2013 05:28 PM
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Hi All:

What about Evista? Has anyone ever associated that drug with teeth/jaw problems? Everything I've researched that could cause those problems mentions Fosamax, but not Evista.

Thanks,
Julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
zengalib #167979 07-16-2013 04:23 PM
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Jiulieann,,
I looked up Evista on WebMD, and didn't see any mention of teeth or jaw problems. The only major serious side effect was in bleeding problems, so that would be something to consider. Hopefully, I can get away with just increasing my calcium and vitamin D intake and exercising more. I really would rather not start taking another prescription drug if at all possible.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
zengalib #167994 07-17-2013 08:24 AM
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I had the bone density tests after my breast cancer. My oncologist chose not to put me on any of the medications for osteoporosis because of the risk of more damage to my jaw and teeth from first cancer treatment. He too recommended calcium, vitamin D, diet and exercise. Just one more thing we need to be proactive about sharing to others who have traveled our path. Ahhh the joys of life :-)

Last edited by Kris; 07-17-2013 08:24 AM.

SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
zengalib #168809 08-03-2013 07:03 AM
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Update on my bone density test. I actually have osteopenia rather than osteoporosis, which isn't as severe. My primary care physician immediately agreed that I was not a candidate for prescription drugs. So I have just upped my calcium and vitamin D. She was very impressed that I did my research before I saw her, so good for me:)!


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
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