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PaulB Offline OP
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On the front page of the on-line N.Y. Daily News, the headline reads, Michael Douglas, " Oral Sex Caused My Cancer." There is a article linked to it, most of which everyone knows about, but mentions specific oral sex caused it, not smoking or drinking, and mentions Oral Cancer Foundation. I did not link the article here, due to the unkind remarks of contributors. I think this will bring the much needed attention to HPV Oral/Oropharyngeal Cancer.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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Hopefully, it will end up being a teaching/learning experience. I have many questions about HPV but I haven't found anyone that can answer me.


Stacey (Caregiver to Husband)
Lymph Node Removed 10/12
Dx SCC MET 10/12
No Primary Tumor Found
IMRT x 33 (Started RT late 11/12)
CT Scan and PET Scan Clear 4/13


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I saw a couple comments from people that were irate the oral sex comment was brought up when it cannot be proven. I think getting visibility to something somewhat controllable will do great things towards eradication/herd-immunity. If one doesn't smoke it could be assumed the cause of the cancer would not be smoking although I believe the damage from smoking alters DNA and passes on to children in the form of damaged genes.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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I was astonished at some of the cruel commentary, so I've registered and had a say (as howaboutlara). Does this American paper have a large circulation? If so, it may be worth others putting their bit in, as well.


Brother 49yo DX 22/6/11 Tonsil SCC HPV+ Stage IV T4N1(?)M0. Carbo/docetaxel (Taxotere)19/7, 11/8 (with E-tux), 1/9; E-tux 11/8, 25/8, 15/9, 30/9, 14/10, 28/10; IMRT X 35 (70gy tumour;63gy nodes;56gy gen area) 19/9-4/11/11. Clear PET scan 1/2/12. 1 and 2 year post treatment checks good.
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klo Offline
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As soon as I saw that comment, i just KNEW it was you Samkl smile. I find the ignorance winds me up too much so I just can't get involved in those ridiculous conversations anymore. Good on you for laying out the facts though.


Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight
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Here's the interview in the Guardian (along with a sidebar) that the NY Daily News article is based on. There's also an article in the New York Post.


Leslie

April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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PaulB Offline OP
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N.Y. Daily News has a huge ciculation. it's in the N.Y. Post too, another large paper. and probably be in all of them. The NY Post stopped readers from commenting on articles about 6 months ago, which was worse than the NY Daily News, as far as comments, probably because it's a trash newspaper. Some in the past were crazy, stupid, political, ads, funny. Obama was always mentioned in many comments, surprised he is not blamed here lol.

Thanks Leslie for posting the link, which has no rude comments.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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I was so disgusted with many of the NY Daily News comments. How ignorant can people be?


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
Joined: Jun 2007
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I am dumbfounded by the reaction on air by my local FOX news team to this story! They didn't want to hear it, and basically said that he can't say HPV/oral sex caused his cancer because he doesn't know for sure! "TMI", they said--"moving on"
They compared his story to Angelina Jolie's, and said while she was doing a great public service, but that 'we don't need to hear this' from MIchael Douglas.

I formulated an email to FOX, but can't figure out how to get it to them, so I'll post it here instead.....

'I am disappointed in Fox News reaction Michael Douglas coming out with the news that his throat cancer was caused by the HPV virus.
TMI they said????? Really? HPV is becoming the leading cause of head and neck cancer! Six years ago as a 41 one year old woman in excellent health, I was diagnosed with stage 2/3 tonsil cancer. CAUSED BY THE HPV VIRUS. How do throat cancer patients know there cancers are caused by the HPV virus? We don't guess-----the tumors are tested for HPV markers! If Michael Douglas is claiming that his cancer was caused by the HPV virus it is because he KNOWS that his tumor tested positive for it!!! Not because he is 'guessing' as the Fox team claimed.
The team was claiming that Angelina Jolie was doing a great public service, and countered with "we don't need to hear this from Michael Douglas". Are you kidding me????
Angelina is brave? Do you have ANY idea what treatment for head and neck cancers entails??? Feeding tubes, drastic weight loss, chemo, radiation, and lifelong complications as a result of this aggressive treatment. ANYONE, including Michael Douglas, who has gone through this aggressive treatment are the brave ones.
Educate yourselves, Fox News team.
Very disappointed.'


I don't post much on here anymore, but this really irked me this morning!


Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
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