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#161214 02-02-2013 09:20 PM
Joined: Jan 2011
Posts: 123
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: Jan 2011
Posts: 123
I was very fortunate to finally meet Eric and hear his presentation at the Yankee Dental Congress today in Boston. I know everyone in that room was moved by what he said and the best part is that they were dental hygentists who will go back to their offices with a new understanding on why their initial screenings are so important.
On a personal note, I was also able to meet a contact at Henry Schein who had asked for permission to use my family photo for their Indentafi screening instrument...it is very sureal to see yourself in a large poster on a convention floor.
All in all it was a good day for us in our crusade to spread awareness!


Jill..CG to Ken, age 43,mom of 1yr old girl.
DIAG:12/9/10 SCC BOT T4N0M0 HPV+
START:1/3/11 IMRT dailyX35 and 7 chemo
END:2/23/11 PEG IN:1/15/11 Out:4/26/11
CT/MRI 4/25/11-marked improvement CT 6/11 new spots
BX 6/23-cancer present
Total Glossectomy sched 7/20/11
7/19/11 Ken's suffering ended
Joined: Jan 2009
Posts: 1,844
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Jan 2009
Posts: 1,844
Jill...I wish we had gotten to spend more time, things are always so rushed wherever I go. Thank you for coming to see me and for everything you do for OCF. We're really shaking things up in Boston getting geared up for this walk, which you are such a big part of.

These last 10 days, in Seattle and in Boston, presenting to our dental professionals gives me hope. We made an impression, and I was so thankful that you came so that those in attendance could understand that they can not only save lives, but families too.

Love you lady, so glad to finally meet in person my friend.


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.

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