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Joined: Mar 2008
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I posted on Livestrong's Base of Tongue Cancer survivor forum for the first time on November 16. Still Zero replies or comments. Only three other posts so this entire LAF Forum for month of November had 4 posts. I did it to add a link to this OCF forum since I didn't see much support going on for the LAF oral cancer members. Compare that to OCF.
But LAF does have a section of interviews with cancer survivors and lo and behold, I found an interview with OCF's Brian Hill when he was a 5 year survivor - 8 years ago.
So I'm sharing this as OCF and Brian are a big part of what I'm grateful for this Thanksgiving. There is even a video.
BH 2002 Interview
Charm


Last edited by Charm2017; 11-23-2010 07:02 AM. Reason: typos

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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Posts: 2,671
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Thanks for posting this, Charm - great BH interview. I am so-o-o-o grateful, too!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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I'm so glad you posted this! Brian is an inspiration to all of us!


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
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Man.... that was great. Thank you, Charm. I'd never seen Brian before. Hey Brian - your neck looks just like mine! (though doubt I have enough hair growth on the left for a natty beard like that)

Terrific.

D2


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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Lance was kind enough to tell my story in many pages in his original book, Livestrong: Stories of Survival. I met Lance at a CDC cancer meeting a decade ago, and he showed me a silly little yellow wrist band that someone at Nike wanted him to use to raise money. Neither one of us thought this young marketing guy had a winning idea. Man were we wrong. Millions of them have been sold, and it started a phenomenon. I was later asked by LAF/Lance to serve on their Grant Review Committee for LAF, which I did for a couple of years, but OCF just took too much of my time to work with them at the same time, and I had to move on. Plus about that time things were changing at LAF and I had serious disagreements with their direction (like I know so F$%^&king much that I know better than them), but the idea of starting a commercial site with ads ( which is now Livestrong.com and has an ad between every paragraph, and material written by people with little knowledge) meant that I had to be true to my inner self. Hey I'm not throwing stones, I've just learned that it's best not to get too close to your heros.

In rereading that part of his book or listening to this video, which was highly edited, I also realize how much I've learned since then, and how far I've personally come. As to the goatee, it's a funny thing. I've always hated them. But the edges of mine I do not trim - that is the exact line where the radiation ended. And about the time that I decided to start sporting it, to help hide that the right side of my mouth doesn't quite work right, Brad Pitt was sporting one and they were kinda in style... Now there's a laugh, me thinking that I could be anything like Brad. While he's got nothing to worry about from me and the TV time that I've got under my belt, for those of you that are unaware, we all do owe him, as Brad has been a generous donor to OCF in the past. (You have to remember that he used to date Gwyneth back in the day, so there was one of those 6 degrees of separation thing going on, that OCF benefited from.)


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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What does everyone think of Lance now?


End of Radiation - the "Ides of March" 2004 :-)
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I think with anyone you have to take the good with the bad.



Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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Still the same, and a hero to many in cycling, and cancer. I don't care if he lied initially, and knew most likely he took something. All these other althetes just beat the tests, the same way Lance Armstring did. I would also say just about all elite athletes take performance enhancement drugs, not because they have to, but must to compete. Being a cancer survivor, fighter, Erythopietan, EPO, is often given to increase RBC, including anabolic steroids, to gain back musle loss, and reverse testosterone inhibition. I take EPO, like epogen, procrit, and took anabolic steroids to recover from cancer, and is nothing unusual.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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Just waiting to see the Oprah interview on Thursday. The Wall Street Journal had a very interesting front page article on Lance. But as far as I am concerned, Lance is yesterday's news, Brian is the future. That's what I felt when I posted this two years ago and having met Brian personally last year, feel more strongly than ever. That interview was ten years ago, so now Brian is a 15 year survivor and inspiration to us all.
I confess that I have never cared much for the so called sport of spandex/lyrca suited up bike boys . (although I would make an exception for DavidCPA) There's a reason why this is a big sport over in France but not here. As far as I can tell in the DC area, they mostly all pretend they are Lance while speeding reckless down the walking paths - I carry a large walking stick to remind them of their manners. Just my opinion
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Jan 2009
Posts: 1,844
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stated as only Charm could smile


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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