| | Joined: Jan 2011 Posts: 123 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Jan 2011 Posts: 123 | I just wanted to let you know that Kerri was admitted today to MGH when she went for her treatment. I talked to her husband who was home with their kids and he said it is for a combination of pain, dehydration and issues with her PEG. I think this is the best place for her until they get her more comfortable. It will be hard on her being away from her precious children but hopefully this will give her more strength to get through the final treatments.
I know she will be checking in on these boards when she is up to it so if you aren't friends with her on FB please leave words of love and encouragement for her here!
Jill..CG to Ken, age 43,mom of 1yr old girl.
DIAG:12/9/10 SCC BOT T4N0M0 HPV+
START:1/3/11 IMRT dailyX35 and 7 chemo
END:2/23/11 PEG IN:1/15/11 Out:4/26/11
CT/MRI 4/25/11-marked improvement CT 6/11 new spots
BX 6/23-cancer present
Total Glossectomy sched 7/20/11
7/19/11 Ken's suffering ended
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Jill, thanks for posting an update! Ive been worried about her. Treatments can be so darn hard on some people. Im sure she is upset over not being home with her children. While being in the hospital really stinks in cases like this its the very best place for her. Hope she is well enough to come home very soon.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Love you sister, you have a "why" in that beautiful family of yours my dear, keep your chin up and keep swinging! You're a badass survivor my friend!! I believe it!!
Last edited by EricS; 10-23-2012 01:00 AM.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jan 2009 Posts: 476 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2009 Posts: 476 | Jill, thanks for the update. I will leave her a message on FB. She is probably where she needs to be to get hydrated and better pain control. It has to be so difficult not being home with the kids but in the hospital she can just worry about herself. I will continue to pray for Kerri. Hope the hospital staff can make her a little more comfortable. Wanda
Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
| | | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2009 Posts: 329 | Thank you for the update on Kerri. I hope they get the problem straightened out. She's in the best place soon it will be over and she will be on the road to recovery.
((Hugs)) Kerri hang in there. I think about you often.
Connie
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 756 Likes: 1 | Thanks for posting the update on Kerri. I know she would rather be home with her family, but sometimes a hospital is the best place to be.
Kerri, I hope you hospital stay is short and you�ll be back home with your family soon.
{{{Hugs}}} and prayers coming your way!
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 |  sorry she's having such a tough time of it - it seemed to be the case from the outset since she had symptoms so early. Hopefully she'll get what she needs from the hospital and be able to focus on treatment an healing. Do they have award service available where we can send her a pick me up? Thanks so much for posting I had been thinking about her as well.
Last edited by Cheryld; 10-24-2012 05:04 AM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jan 2011 Posts: 123 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jan 2011 Posts: 123 | I sent some flowers I will check into any other service for cards, etc.
Jill..CG to Ken, age 43,mom of 1yr old girl.
DIAG:12/9/10 SCC BOT T4N0M0 HPV+
START:1/3/11 IMRT dailyX35 and 7 chemo
END:2/23/11 PEG IN:1/15/11 Out:4/26/11
CT/MRI 4/25/11-marked improvement CT 6/11 new spots
BX 6/23-cancer present
Total Glossectomy sched 7/20/11
7/19/11 Ken's suffering ended
| | | | | Joined: Jan 2011 Posts: 123 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jan 2011 Posts: 123 | I couldn't find an award service online.
I have her room number and address if anyone wants it you can PM me or I can give you my home address and I can send them to her house. No ETA in when she will be released at this point.
Jill..CG to Ken, age 43,mom of 1yr old girl.
DIAG:12/9/10 SCC BOT T4N0M0 HPV+
START:1/3/11 IMRT dailyX35 and 7 chemo
END:2/23/11 PEG IN:1/15/11 Out:4/26/11
CT/MRI 4/25/11-marked improvement CT 6/11 new spots
BX 6/23-cancer present
Total Glossectomy sched 7/20/11
7/19/11 Ken's suffering ended
| | | | | Joined: Jan 2011 Posts: 123 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jan 2011 Posts: 123 | I heard from Kerri's husband. She is done with chemo and has 2 radiation treatments left so she should be done in Tuesday!! They are hoping she might be able to go home in Wed.
Jill..CG to Ken, age 43,mom of 1yr old girl.
DIAG:12/9/10 SCC BOT T4N0M0 HPV+
START:1/3/11 IMRT dailyX35 and 7 chemo
END:2/23/11 PEG IN:1/15/11 Out:4/26/11
CT/MRI 4/25/11-marked improvement CT 6/11 new spots
BX 6/23-cancer present
Total Glossectomy sched 7/20/11
7/19/11 Ken's suffering ended
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