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#153788 08-28-2012 08:26 AM
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EzJim Offline OP
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Ny lower lip and chin are completely numb since they took the jaw bone. Has any of you that lost your jaw bone having this problem. It makes for a mess when trying to do anything. You could be slobbering on youself and not know it until you look at your shirt.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #153801 08-28-2012 10:48 AM
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Jim, I still have a jaw bone but my left jaw and chin are still numb after almost 3 years, and yes I do slobber occasionally. Luckily my loved ones tell me when it is happening.


Wendy
46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear

EzJim #153803 08-28-2012 11:04 AM
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Hi Jim! Missed you! For me, the transplanted skin on the left side of my cheek and neck has no feeling. I can tell if someone would touch it and alot of times it itches but there is no real sense of much else there. Its just something you get used to dealing with.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
EzJim #153809 08-28-2012 12:25 PM
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I'm in the same boat Jim, mine was before the mandiblectomy though due to PNI


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
EzJim #153818 08-28-2012 05:49 PM
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Same here Jim. Including my lower lip, the lower section and left side of my face is numb since the mandiblectomy. My neck is numb and tight. I can't feel the artificial gum structure in my mouth cavity. I can feel sections of my cheeks and upper teeth. The result of bone removal and reconstruction, nerve damage, soft tissue removal, muscle removal and radiotherapy chemotherapy damage.

Take care.
Karen

Last edited by Karen Rose; 08-28-2012 05:52 PM. Reason: typo

46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
EzJim #153848 08-29-2012 01:53 PM
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EzJim Offline OP
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I'm used to it Christine but it but it sure can get embarassing when you are out. LOL Look like a Saint Bernard with the drools. Thanks all for the replys.Maybe we should start a club Eric. We can call it The Eruptions.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #153857 08-29-2012 02:47 PM
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Posts: 61
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EzJim

I am fairly new around here and don't know who you are but you are gifted with being able to bring humor to "C" which otherwise, at least to me, generates nothing but very depressing thoughts and images. By association, your mention of a Saint Bernard caused me to have a joyful smile and for that I am grateful.


2010 sore throat
Jan 2011 ENT no prob
Jun CAT no prob
July PET
July biop pos
July PEG

HPI (1-3) T2N1 squamous cell carcinoma right tongue base treatment chemo/XRT end Oct 2011.
Jan 2012 PET neg
June PET-18mm mass right tongue base pos to 7.2 SUV no nodes pos
July MRI.
July bio pos
EzJim #153892 08-30-2012 12:21 PM
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EzJim Offline OP
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Thank you nocam. It's nice to meet you. I think I must be the old man of OFC. LOL I don't like to think so tho. LOL going on 77.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here

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