| | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | But....don't believe for a minute we all weren't right where you are at one point. Once you start you will get the feeling that you are now in control because you are killing it and that's a great feeling. Without it, you will NOT be around until your daughter is 30.
BTW...Kevin was 52 when we started the battle. Turned 53 during.
We're here for you!!
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Apr 2012 Posts: 47 "OCF across the pond" Contributing Member (25+ posts) | | "OCF across the pond" Contributing Member (25+ posts)
Joined: Apr 2012 Posts: 47 | Okay Dad, Your only 5years older than me. But thanks for the solid advice. ?Are you the TERMANATOR on OCF?
"I'll be BACK"
21st March squall cells.Endescopy not oesophagus, ENT .April endo nose CAT MRI general Panendoscopy prim-HPV 16 base of left tongue one node-stage 2.23rd of May.14/5/12 9 teeth out.8/6/12 PICC inserted.11/6/12 1st Chemos 25/6/12 2nd Chemo Cisplatin5FU:27/6/12 PEG23/8/12 Radiation finished 1/9/12.
| | | | | Joined: Jun 2008 Posts: 51 "OCF Down Under" Supporting Member (50+ posts) | | OP "OCF Down Under" Supporting Member (50+ posts)
Joined: Jun 2008 Posts: 51 | Thanks Charm for Patsy's words, and verybody else for your kind comments. I have just had a BCC cut out right on the scar on my neck from the SCC surgery maybe I could make up a song about it LOL, it was rather large by the time I got around to getting it cut out, but hell what is a scar on a scar, nuttin right? I am practising on getting my weird old sense of humour back I thought
it was about time to pick myself up, besides I have two of my grandkiddies coming to stay with us for a week, cant wait.
Magie
SCC Base of tongue stage 4. 10 hour operation Radical neck dissection and hemiglossectomy 23/10/06 35 Rad treatments and 3 high dose Cistplatin Dec 06 - Feb 07. Ex casual smoker 6 to 8 a day - casual drinker. Very fit and diet conscious.
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Keith, I betting you're on pain meds, I was a big dick when I was on them too. It'll pass brotha when you get off of them...unless it's a chronic pre-existing condition as in my case 
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jun 2008 Posts: 51 "OCF Down Under" Supporting Member (50+ posts) | | OP "OCF Down Under" Supporting Member (50+ posts)
Joined: Jun 2008 Posts: 51 | Hi Maria, I guess I am a �oung" grandma, as my eldest grandson is 16...and I am 62....they keep me young especially the youngest grandson aged 8 calls me hey old grandma, he just cracks me up with laughter..
SCC Base of tongue stage 4. 10 hour operation Radical neck dissection and hemiglossectomy 23/10/06 35 Rad treatments and 3 high dose Cistplatin Dec 06 - Feb 07. Ex casual smoker 6 to 8 a day - casual drinker. Very fit and diet conscious.
| | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | Your youngest grandson sounds like a character! Glad you are picking yourself up - and have a great week with the grandkids. I will have my niece (the fancy attorney) up for a day in the near future, and I know I am looking forward to that.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Jun 2008 Posts: 51 "OCF Down Under" Supporting Member (50+ posts) | | OP "OCF Down Under" Supporting Member (50+ posts)
Joined: Jun 2008 Posts: 51 |
thank you all for your comments, I have got over the "why me" for now it will come back again I am sure and I know I can come here and vent and get a good slap up the back of my head to get me back to "normal" Thanks and good luck to you all.
SCC Base of tongue stage 4. 10 hour operation Radical neck dissection and hemiglossectomy 23/10/06 35 Rad treatments and 3 high dose Cistplatin Dec 06 - Feb 07. Ex casual smoker 6 to 8 a day - casual drinker. Very fit and diet conscious.
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