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| | Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 493 | Slim, I really identify with your husband veging out on the sofa post-tx. I used to watch the Gilmore Girls everyday, and watched the Food network constantly, which was funny because I couldn't eat. There were some days when I didn't even want to get dressed. We live on two in the country, and the mailbox is out by the road. My husband started making me walk out to the road to get the mail everyday just so that I would get up and get out. John, this is not fair; nobody deserves this, but soon you will feel just a little bit better each day.
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | Ok...I wish I had seen this post before posting on the other one. So sorry John. You CAN do this. It's ok to be angry and sad and all the other crappy feelings that goes along with this. If you didn't feel this way you wouldn't be human!!
Praying you will find your way through this.
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
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