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Joined: Nov 2009
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Wow. Sounds like your boss is really being a jerk. I was pretty lucky, because I was the boss, but my Board was very understanding and wonderful. (I was director of a small public library.). Isn't great, though, the way the kids and parents welcomed you! It's interesting that people, even though many of them are sympathetic and kind, don't understand the aftereffects of this horrible disease. They think, OK, you had surgery and treatments and now you should be all better. I know that I didn't know anything about oral cancer until I got it.
Hang in there, John, you can always vent here. We are all here for you!


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
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"OCF Canuck"
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Some of this is just getting over the trauma and the diagnosis... it's still very fresh. Whatever they do or don't do it doesn't matter... do what you have to do to recover. and be kind to yourself. you deserve it. take care and hugs.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Thank you guys for your support. Things just seem to be escalating with my boss. Because yesterday I was at work for half a day instead of just a few hours more parents wanted to catch up with me and boss seemed irritated and annoyed that I was sharing with them in a professional manner what actually happened and correcting her telling them I went on vacation. And yesterday she threw it in my face that I spoke to human resources so I informed her that apparently I need to call them again and see if I get any results from a second phone call.
Never in a million years did I ever think me having cancer and having major surgery to remove it would garner this kind of reaction from my boss.


Taking a break from the forum for a while. Thank you so much for your support if you've been supportive.
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"OCF Canuck"
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Fight for your rights - smile I wouldn't be hurt at this point I'd be pissed! wink


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Hi John,
I taught preschool for many years as well as operated a Home day care. If it is at all possible, remember your kiddos. They love you and need you and I'm sure are thrilled to have you back. Go in, do your thing, hand parents your phone number if they want to talk and just explain that it has been requested you don't speak of it on company time or on the premises. Your boss is going to be the one looking like a fool in the end. If HR knows she is giving you a hard time about going to appts, they will know that is harrasment and most likely she will be warned and possibly terminated if it continues. If there is no HR, call the Labor Board. I'm sure it will spark GREAT interest.
There is definitely SO much ignorance out there. Kevin has his first PET on the 12th and between me and all of you, because he doesn't read the forums much, I am nervous as heck. This constant yuck in my stomach and really, just on again off again crying fear. Fighting all of that and keeping it private because to all our families, we are done. He's back to work and life is normal. We all know the drill.
Anyway, we are here for you and feel for you. This person sounds as if she has some pretty serious insecurity issues and you are her target to give her power right now. DONT let her have that on you. Just smile and move on if possible! I know the preschool route though, and it can be pretty hard when there is tension in the air. The kids know..... Love them and play!!!!!!
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
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Thanks Kathy. Most of the parents think age is a lunatic now because she told them I was on vacation and the parents look like they've been slapped in the face when I tell them no, I was actually battling cancer. The kids are the only redeeming factor of my job and some of their reactions to my returning have touched my heart in a way I'll never forget.
I've learned from all of this, on some level, that my time here could be up at any moment and life is fragile and I just need to be thankful for each moment I'm given and do my best to make the most of those moments. My battle with cancer has stripped away a lot of those life pretensions that rule so many people's life and I can't give my boss the power to steal even a fraction of those moments.
Like last night- my favorite band had a show locally and played/dedicated a song just for me and they came over and talked to me about all I was going thru and shared their own experiences. These are the kind of moments my life needs to be centered on. And you guys are all right. I can't lend her any of those moments.


Taking a break from the forum for a while. Thank you so much for your support if you've been supportive.
Joined: Nov 2006
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Good for you, John. Sounds like you are on the right track! People that try to give you grief are at all levels of teaching and they just dig themselves into a hole. I had one who was a problem for everyone in many different departments and the day she left (or was "encouraged" to) was widely celebrated. Teaching has so many rewards - just seeing the light in a child's eyes - even at university level, when they've understood something or succeeded in a task is awesome! Celebrate and recognize all the beautiful moments that come your way! Do the happy dance with your kids!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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"OCF Canuck"
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So glad you're back on track! Onward and upward!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Well got a call from an oncology office today and apparently my doctor/surgeon wants me to pursue radiation and I'm so scared and upset. I don't know if it's really worth all that I'll lose


Taking a break from the forum for a while. Thank you so much for your support if you've been supportive.
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John, radiation is NOT the end of the world! It is of course your own personal decision. My own opinion is that its always a good idea to try to hit it with everything you can so hopefully you do not ever have to deal with it again.

Ive seen alot of people come thru here. Some go thru rads and its no big deal. They have about a 5 month spell where they arent 100% and then its pretty much right back to their old lives. A year later you would never know they were sick at all. This is of course not everyone. You probably have seen alot of horror stories about radiation. Just remember everyone is different. The better your nutrition and hydration the easier you will have it.

Nest wishes with whatever you decide.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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