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Joined: Jun 2011
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I thought of something else that might help too. If you have another space in the house where you live, sleep in another room. You need to get your rest and have a space of your own. My husband and I are not fighting but he needs to sleep by himself so that he can get in and out of bed as often as he wishes.

I love having my own little bedroom with a candle, books/magazines and peace. I have to say that I do agree that he is on a self-destructive path. It is hard to leave someone when they are sick but on the other hand, abuse is abuse. If you cannot tolerate it or fear for your safety then let him get visiting nurses or other people to take care of him and take some time away to think.

Keep us posted. We are here for you.

Ellen


caregiver for husband
diagnosed with oral cancer May 2011 after 6 mo
node lft side and several in jaw involved
Base of Tongue Stage IVA
7 weeks radiation
Cisplatin-3 chemos (beginning,middle,end) IntraV administration
Joined: Dec 2010
Posts: 5,264
Likes: 5
"OCF Canuck"
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I agree pretty much with everything said here... smile first off he's being abusive - you've done enough - perhaps a week by himself will make him realize how much he needs you. Secondly it could be the mixing of meds and beer - one has to go... You can pour out the booze before you leave - or - hide the meds until he agrees no more booze... Call it tough love - the abuse may get worse at that point but - you have the power to leave. He could very easily kill himself with that combo. Thirdly - he's on a fast track to the grave... He's probably pissed at himself, the world, and his situation. He's taking it out on you. You're not his whipping boy and understanding goes only so far. You can try to help him... But truthfully he doesn't seem to want it... He's self destructive and taking you down with him. He is the only one at this point who can help himself. i wish the situation were different for you but unfortnately it's not and by taking his crap you are just giving him more power. Don't take his crap anymore. Take the dog and leave if you can. Hugs


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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SUEZ Offline OP
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Oh honey I am not going anywhere, it's MY house not his. #1 also is that we are NOT married. Though together for 14 yrs but nothing on paper! #2 My house not his, I fought long and hard for the dump in my divorce and nobody elses name on the deed but MINE!
We had a good talk yesterday about death. There was a tramatic event yesterday that happened. My daughter ran over our 15 yr old darn mama kitty...we had to put her down...it was her cat too. She was mortified, I witnessed it cuz I was behind her car moving mine out of the way and saw at the last second the darn cat going under her car...I think mama kitty was deaf...she was old and kinda sick too and I kept telling everybody I think she is trying to commit suicide cuz she kept laying under our car tires! My daughter was hysterical...I kept composed, but lost it last night when I tried to go to sleep, I just kept replaying what happened in my head and trying to stop her from running her over. All the what ifs were/are still going thru my head. I went to Walmart after work to get her some more can food so I was behind Tori and she had to go to work but I came in to bring in the food IF I didn't go I would have been there before Tori got home and maybe this wouldn't have happened. She said "why me mom why me?" and I said you were her master it was to be this way I guess. She was telling Beedy she was soo sorry and if I hadn't witnessed this I wouldn't believe it but she was wrapped up in a towel and she pulled her damn paw out and put it on Tori's hand as if to say "it's OK I forgive you" OMG for Christ Sake...are you kiddng me? Yes she cried harder. It was our worst night in our life ever...and she still had to go to work as a pizza hut deliverer cuz they couldn't find nobody else. So now I am down 2 cats as well as 2 dogs. Poor mama Beedy...
But as for Ron, he cried yesterday also which I think was good for him and again I told him about his drinking beer with the meds, so he actually went and was drinking a ginger ale! But he did say, he is going to live his life the way he wants to and he said he will be happy in what he choses to do. OK...but you aren't going to be mean to me! And listen...he is having issues with remembering things...it's the meds and alchohol right? only when he's doing them both. I can't wait for them to take him off the oxy crap next week he has his 2nd Swallow Study on the 11th. Gosh I sure hope he passes. Oh and another thing, he won't go to the store any more, like Walmart to get dog food, cuz he don't like the way people look at him with his tube and his trach, when did he ever give a darn bout what other people think? He is really going a total different direction here this time.
Thanks all for listening. I'll keep you posted. OH and I told Ron to go sleep in the living room, we have 2 couches and the tv is in there, but yesterday he actually slept thru the night til 930 this morning he said. Which is great! Usually when he does too much with beer he wakes up all the time so maybe he may notice he sleeps better. Who knows.


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
Joined: Jun 2011
Posts: 147
Senior Member (100+ posts)
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Joined: Jun 2011
Posts: 147
Sorry about your cat. Stay on top of the situation and sleep by yourself if it helps. If it is your house then he will have to be with someone else if he cannot be somewhat kind to you. Where is be getting the beer? Can you stop his supply? He probably needs the oxyxodone for pain but certainly not the beer. Good luck


caregiver for husband
diagnosed with oral cancer May 2011 after 6 mo
node lft side and several in jaw involved
Base of Tongue Stage IVA
7 weeks radiation
Cisplatin-3 chemos (beginning,middle,end) IntraV administration
Joined: Jul 2010
Posts: 531
SUEZ Offline OP
"Above & Beyond" Member (500+ posts)
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He's going to the store and buying it. I can't stop him. He's an alcoholic. Nobody can stop him but himself. Have you ever tried to stop and alcoholic from drinking? I want to break all the bottles and throw them in the garbage, but do you know what that would do? I can't do that. He's been this way since he was a teenager. He's actually gotten much better since we've been together so I've been told, I tamed the tiger. But with the damn oxy...it's bad. My kids have tried, his family has tried, we all have tried, he has gone to AA he has gone to jail(before me) he has gone to a home...the man has issues and I don't know what it was and I probably think it's the cancer now. He never was married, had any kids no responsibilities til he met me, never dated anybody over 6 months and we are going on 14 yrs never held a job for over a year til he met me. I've said enough. I'm going to get hold of his home nurse and see about changing his damn oxy...don't know what else they make in liquid form for pain. Hopefully something not so potent for an alchoholic.


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
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Posts: 2,671
Suez - You really need a break. I'm so sorry about Beedy and your daughter's loss. It's very common for alcoholics to not remember stuff. When I was with my ex - there were many times he could not remember what happened the day before. Whatever you decide about Ron you have to make very sure that you follow through and do what you say because otherwise, he won't believe anything you say and will keep giving you grief. For example, if you tell him he has to shape up or ship out and find himself another place to stay, you have to stick with that decision and not take him back just because he's sweet talking you. You have to be consistent like you are with children (most alcoholics are very immature in their thinking). If you tell a child "no more candy" and then later give them candy because they are having a tantrum, then that's what will happen all the time. . . candy and tantrums. You can let it be Ron's choice: Either he chooses to get with the program or he finds another place to stay. How about that? I know it's harder to say than to do . . . Goodness knows, it took me 20 years! Don't let it be 20 years for you!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Jun 2011
Posts: 147
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Joined: Jun 2011
Posts: 147
Yes you do. My husband is a recovering alcoholic been sober for 31 years. It is not an easy journey and he had to work hard to kick it. He went to AA and had counseling and now he is a licensed clinical social worker and drug/alcohol counselor. He wants to give back because he was helped. It is hard enough to beat alcoholism but with cancer simultaneously, it is almost impossible to stay focused. Have you considered going to a support group to help with strategies for you to deal with all of this. The oxycodone is probably something that he needs now so it would be better to work on the beer. I really think that this is not something that you can do alone. Try to seek help, even if he does not want it, you can use the support.
This is like dealing with a child, you have to be strong and consistent, mean what you say. He will soon see how much you do for him and if he doesn't that you need to move on. No one deserves this kind of treatment and you are enabling him by staying and listening to it while you pray for "good moments." Please stay here so that we can support you.


caregiver for husband
diagnosed with oral cancer May 2011 after 6 mo
node lft side and several in jaw involved
Base of Tongue Stage IVA
7 weeks radiation
Cisplatin-3 chemos (beginning,middle,end) IntraV administration
Joined: Jul 2010
Posts: 531
SUEZ Offline OP
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2010
Posts: 531
I took away his Oxycontin pills this weekend. Yes he's taking them by disolving them in water he said he takes them opposite the Oxycodone. Don't know if it's days or hours, I think days. BUT I took them away and this weekend he was really so much better AND this morning I got his old smile back! I told him I missed that smile and doesn't he see that those pills made him mean to me? He was very angry with me Saturday, he said I "stole" from him and wouldn't talk to me and as the day went on without them he got better and Sunday he slept most of the day and didn't drink any beer and by the time our grandkids left and thier mom, we actually sat outside together and "talked" and watered the flower beds together, something we have not done in over a week or more. It's the damn Oxycontin! He can't take that after disolving it I told him he said he don't take it all only a little bit at a time, but it's timed release. So maybe now he will see I'm not BS'ing. This Thursday he goes for his 2nd swallow study, he is so hungry and angry because he can't eat, he does cheat and swallow some liquids and it freaks me out. I made stuffed cabbage yesterday and this morning there was a bowl on the sink that was not there when I woke up and got my coffee and he was standing there and I asked what it was "that" was when he gave me that smile that he had gotten some of the liquid from the cabbage because he couldn't take it anymore. I told him I'm happy you want to eat but you need to be careful. I hope he passes Thursday. His pain is mostly he says caused from his trach and tube in his throat and a little bit in his mouth where they stitched his flap up again. I think he's doing quite well without the oxy. I hope he sees this. I threatened he was going to be put in rehab. Maybe it worked?


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
Joined: Nov 2010
Posts: 167
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Nov 2010
Posts: 167
You have travelled a very rough road. I have no useful advice whatsoever to add to the main issues you're having with Ron. The only thing that might be of use is my advice about the swallow test. You hint that you might be suspicious that Ron is eating or drinking by mouth and may be keeping it from you. If that is the case then it's really important that he is honest about that when he has his swallow test because it can have a huge impact on how the test is interpretted. If, for instance, he's been "sneaking" a good amount of food and fluid on a daily basis and has NOT gotten pneumonia as a result then the SLP might be more confident in his ability to eat safely even if his swallow x-ray doesn't look perfect. If though, he had nothing to eat or drink at all since his last test and the swallow doesn't look so good, the SLP might be very conservative about him moving forward with eating for fear of risk of aspiration pneumonia. So, bottom line now is that if he has had food and fluid and NOT gotten sick then that could be a good sign! Make sure he understands this and is honest about it - it's more important that the SLP has ALL the information to base her judgement of his ability to eat than worry about not being totally honest about eating!
Good luck!


Jennifer (39)
02/10 SCCa Tongue & Base, HPV-
03/10 Partial Glossectomy & ND 11/10 Revision due to additional nodes 12/20-2/2/11 IMRT & concommitant chemo 2/11 PEG in 3/11 PEG out
Back at work and feeling good 03/24/11!
12/20/11 - 9 month f/u PET/CT - all clear!
Joined: Jul 2010
Posts: 531
SUEZ Offline OP
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Jul 2010
Posts: 531
Wow what a totally different person he has become since I "stole" his pills from him. Sunday and Monday was actually able to sit and talk to him like we used to do! His mom came over and we all sat outside and had a conversation, even my oldest daughter said when he answered the phone the other day she thought it was her brother because he was very much clearer and understandable when he spoke! Even she noticed! So happy! And Jennifer, I will let him know to let them know he has swallowed some things, like last night I got out of bed and like a deer in headlights he was making a can of cream of potatoe soup. I just gave him a bigger bowl and told him to be careful, there was chunks of potatoes in there he forgot there was, but he still got some down but the dog got the most of the can. I can't wait til he goes Thurs I told him yesterday only 3 more days Ron, hang in there! But one thing I am doing that's pretty sneaky...he kept the glass bottles from Starbucks Iced Fraps he was on a kick til I just started making them at home, but Saturday I got the idea from my daughter's girlfriend who is an STNA and she lives with us, to put his Isosource in the coffee!!! I did and he never noticed!!! So...I know he is at least getting 1 can of that when I'm around! It makes 2 of those bottles. tee hee hee. And he even thanked me for making it! Funny story when I made it for him yesterday when his mom was there, he came in with me, than went back out, I ran downstairs to get a can out of basement fridge, he came back in!!! Oh crap...I stuck it down my pants!! Ummm sure didn't look right that's for darn sure so I got to the counter in front of the microwave like waiting for the water to boil while he was getting water for the dog dish outside. Whew that was a close one! Almost busted!! Thanks all!


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
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