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Joined: Jun 2009
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Hello All:
Just thought I'd pass this by again in hopes that someone else has similar problems/symptoms and possibly a solution. My treatments ended in 2/08 with the metalic mucus and associated after-radiation effects, for about a year. I never had dry mouth then though, which is strange. Just mucus. Then things subsided, with occasional mucus in the mornings, but would clear later in the day. Then, almost a year later, the mucus in my mouth became very, very sweet sick, to the point of almost making me sick. About 6-months after that, I woke up one morning with my mouth so dry that my tongue was literally stuck to the roof of my mouth. That is how it is now, and the sweet putrid taste is with me constantly. Sometimes my saliva is pasty, and sometimes it is frothy white. I have no dryness except upon waking and as soon as I brush my teeth, the saliva/mucus starts. I have been to ENTs, gastro doctors, allergists, and other doctors, who usually end up saying it's after-radiation effects. Is there any of you who have had such symtoms? From reading other posters, almost all suffer from dry mouth years after treatment - mine is full of this gook I either cough up or it seems to come back up into my mouth when it's white and frothy. Anyone? Suggestions? Thanks so much.
julieann

Last edited by ChristineB; 07-04-2011 03:19 PM.

Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
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Hi Julieanne
Alex is not as far through as you but suffers similar problems. He calls it "foam" and it gets progressively worse through the day after waking up initially with dry mouth. If he has a big day of talking, the foam often gets worse.

He also suffers taste disturbance and our nutritionist recommended zinc supplements to normalise sense of taste. Something for you to consider and ask your nutritionist or doctor about?


Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight
Joined: Jun 2009
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Thanks, Karen. I started zinc about 2 months ago, and so far, nothing cry The putrid sweet, sweet taste is what's so sickening - it really makes it hard to eat what little I could eat before - just plain yucky with the mucus/saliva/taste. Thanks for writing because I haven't ever heard of anyone starting out with dry mouth and then immediately changing to the foamy/sometimes sticky stuff. I'm still investigating other causes, so will let you know if I find another solution.
julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
Joined: Jun 2007
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Julieanne, FINALLY!!!!! Somebody else has a similar problem. Maybe someone else will speak up. I hope you are able to get to the bottom of this. Hope the zinc works.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

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