| Joined: Apr 2011 Posts: 2 Member | Member Joined: Apr 2011 Posts: 2 | I hope you feel better tomorrow... Another day...another chance... | | | | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | "OCF Down Under" Platinum Member (300+ posts) Joined: Jul 2009 Posts: 453 | Don't worry Eric, I feel old too and I don't have the flu lol. Hang in there mate and get well soon. Listen to the women in your life because we know xo
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone No surgery Teeth removed 06/07/2009 radiation 13/07/2009 x 7wks chemo 15/07/2009 x 3 Cisplatin last TX 28/08/2009 25/11/2009 PET-lymph node activity. 08/01/2010 CT Scan-ALL CLEAR 03/03/2010-Peg removed 01/2013 left side of Jaw removed and replaced with pectoral flap. 23/12/2020 scan show lesion in tongue 01/2021 SCC stage 3 base of tongue diagnosed 01/03/2021 chemotherapy started.
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | I feel old, too. But that's because I am old.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | I'm actually pretty proud of myself, I've been listening and taking advice lately...which may be a testament to how sick I was. I found out that I actually had developed pneumonia and due to my issues with antibiotics I've had no choice but to rest and follow not only Dr's orders...but my wife's too...and my Mom's.
I'm really just frustrated and having to be in bed just brings me back to when I was in incapacitated for 2 years, basically worthless. Not good for me. That and losing all of that weight...I'd worked so hard to put it on and was looking great. I was so proud of the muscle that was starting to fill out my frame again. Now I look emaciated, I'm surprised a charitible group hasn't started knocking on my door wanting to feed me. The thought of all the protien shakes and lifting I'll have to endure to get back the now 20lbs I've lossed makes me feel more mentally and physically exhausted then I already am.
I know I'll get my motivation back when I feel better, but like most men I'm a big baby when I don't feel well.
Sorry for the vent, thanks for the support.
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: May 2010 Posts: 638 "OCF Down Under" "Above & Beyond" Member (500+ posts) | "OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: May 2010 Posts: 638 | Eric so the moral of the story is LISTEN TO YOUR WIFE sooner. That way you won't have to endure all those protein shakes and lifting. Dopey bugger!!
But seriously, let me share my own insight on this and you ask your wife if I'm right.
Some men are so busy providing for their loved ones, they don't hear their women telling them to slow down as this is a long way down the priority list compared with just having their man around to share, laugh and be with.
Karen
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
| | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | Karen,
I think that was true of me before cancer. Certainly hits the nail right on the head as it pertains to my biological dad, he's a workaholic.
I've gotten to the point where I do listen to both my wife and my business partner as they can look at me and tell when I need to stop. Anymore I listen without much pushback because I know they are right. It doesn't mean I like it but I've accepted it.
What we did find out was it wouldn't have made much difference if my work schedule was less before getting this bug. The whole area I live in got hit hard with it and many people were down for a week or so. My boys were...Aly, the machine she is was down a day or so before she was back to normal work days.
Myself, I couldn't eat and therefore had no energy to fight it off. I normally don't have an appetite anyway and have to "motivate" myself to eat, I couldn't do that. When I tried to force Ensure down I asprirated badly (it's hard to swallow anyway and almost impossible with no energy)which was what brought on the pneumonia.
The mistake I did make was when my fever did break for more then a day and I would try to get out and about, mostly because being confined to a bed takes me to a bad place. I would spike a fever shortly afterwards and go done again.
Now the flu has subsided and I'm dealing with the pneumonia. The work hours I was pulling Jan-4/1 were actually less then the hours I pulled May-Dec. I cut about 3 hours out of my typical work day (12-14 hours to 9-11/day).
Your insights though are right on though. There will be a time here shortly when I can and will enjoy my family as we did at one time. In life there are seasons to work and seasons to live and play, it's identifying those seasons that is the hard part.
Thanks for the post Karen and the insight.
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Eric
The "bugs" this year were especially virulent. Time to take a real breather and recover my brother. I will hold down the fort here at OCF while you gather your strength back. Aspiration pneumonia is serious trouble - it's the reason I can not even chew food and spit it out -too much risk. Did you know the husband of the woman who started the Susan Komen breast cancer walk had throat cancer and beat it, but died of aspiration pneumonia while celebrating in a dinner overseas.? I posted that news article a few years ago.
keep the faith Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Nov 2010 Posts: 167 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Nov 2010 Posts: 167 | Hey Eric - you got hit doubly hard with the flu AND pneumonia! So sorry to hear of the frustrating loss of all that you've gained - wellness is a slippery slope isn't it? The good news is that you've done it before and you know you can (and will) do it again! Be strong, be patient, have courage!! (from what I've gathered about you from your posts I think that being patient is really the only thing you'll struggle with!)
Take good care!
Jennifer (39) 02/10 SCCa Tongue & Base, HPV- 03/10 Partial Glossectomy & ND 11/10 Revision due to additional nodes 12/20-2/2/11 IMRT & concommitant chemo 2/11 PEG in 3/11 PEG out Back at work and feeling good 03/24/11! 12/20/11 - 9 month f/u PET/CT - all clear!
| | | | Joined: Aug 2010 Posts: 157 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Aug 2010 Posts: 157 | Just wanted to say I hope you feel better Eric, and thank you for all your great advice! Get Well Soon!
Your Friend, Nate
SCC left lateral tongue, left neck dissection. 2 nodes positive. 3 All Clear then ITS BACK 8/23/11 Shows 1cm in tongue in CT SCAN, Radial Free Arm Flap with Radical Neck Dissection 9/20/11 , All Nodes Negative, But Tongue Tumor Poorly Differentiated. Awaiting next step in treatment on 10/5/11... RIP Nate 7/28/12
| | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | Thanks Nate! Miss ya bro, I hope all is well with you
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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