| Joined: Nov 2010 Posts: 167 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Nov 2010 Posts: 167 | It's been 2 1/2 months since treatment ended and I decided that my body was feeling healed enough for a massage - I've been yearning for one for some time but the thought of it made me feel a little vulnerable and frail. So today was the day and it was feeling so good...until...I rolled over onto my back, the massage therapist put the bolster under my knees and all of a sudden I was flat on my back on that damned radiation table!!! It took me a couple moments to even figure out why I was having a small freak out!! I went on to enjoy the rest of the massage but it was a reminder that I will ALWAYS have reminders of cancer and my time in treatment. It's always going to be there - isn't it? Never far from the surface, just waiting to bubble up when you think you've stolen a moment of peace.
Thinking of you all at whatever point you are in this wild journey!
Jennifer (39) 02/10 SCCa Tongue & Base, HPV- 03/10 Partial Glossectomy & ND 11/10 Revision due to additional nodes 12/20-2/2/11 IMRT & concommitant chemo 2/11 PEG in 3/11 PEG out Back at work and feeling good 03/24/11! 12/20/11 - 9 month f/u PET/CT - all clear!
| | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | Jen,
You know I never think about it anymore. I enjoyed massage frequently during tx and after and it never brought me there. Recently I went into the rads tx center (its in Idaho but my tx plan and surgery was thanks to the UW in Seattle) and thanked my RO and nursing staff . I think the only time I've had an issue is going back to the UWMC where I had the surgery that paralysed my face so all my consults and other surgeries were done at Harborview. Still a UW facility just different scenery...same drs though.
Funny really that it bothers me but it does, emotions and the mental thing is really interesting that way. I hope it doesn't ruin anymore massages, they are good for body and soul.
Keep your chin up
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: Nov 2010 Posts: 167 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Nov 2010 Posts: 167 | Thanks Eric! It didn't get to the point where it ruined my massage - just interrupted it I guess! Definitely not my last massage - it felt too good! Just made me ponder some on how much cancer treatment has left its mark on my psyche as well as my body!!!
Jennifer (39) 02/10 SCCa Tongue & Base, HPV- 03/10 Partial Glossectomy & ND 11/10 Revision due to additional nodes 12/20-2/2/11 IMRT & concommitant chemo 2/11 PEG in 3/11 PEG out Back at work and feeling good 03/24/11! 12/20/11 - 9 month f/u PET/CT - all clear!
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Cannot wait to have a massage!!! Need one desperately - rads flashbacks be damned!!!  glad you are feeling good - you deserve it!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I am geeting a massage in June and can not wait. I know when I walk to hall to my RO, my thoughs afre "The walk of doom" as his office is in the same location as my radiation was. I hate making that walk, as the flashbacks nd pain all come back to me.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Sep 2009 Posts: 177 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Sep 2009 Posts: 177 | Gee everyone, I never had raditaion, but I have flashbacks of my cancer treatment, surgery's, healing period, all the time. Smells, sounds, songs, places, I guess I am glad I am not losing my mind. Am I just normal? Maybe?
Wendy 46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear
| | | | Joined: Dec 2010 Posts: 62 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Dec 2010 Posts: 62 | I'm a massage therapist and I can tell you that it is not at all uncommon for massage to trigger release of emotions and feelings. Our bodies store memories in our tissues and sometimes touch or even, as with Jennifer, a position or some other aspect with similarity to an experience, can bring up a memory or an emotional response.
Often your therapist will be aware that you are experiencing something but if not please don't hesitate to ask for a brief break to collect yourself. I had a client who had recently lost a beloved dog. The music that I was playing during our session created a tremendous, almost painful nostalgia for her pet which reduced her to tears. She asked me to change the music which I of course did and she was able to enjoy the remainder of the session.
I hope that Jennifer's experience was a one-time affair and that she will be able to enjoy a good massage. We all deserve that pleasure!!
Catherine, SCC floor of mouth DX 2010,unclear margins, PET scan clear, no chemo or rad,biopsy in 9/2010, 2nd excision 10/2010 didn't get all carcinoma in situ; partial gloss & excis. right floor 2/2/2011 margins clear. Part.gloss-10/5/2011 sev dys clean marg. HPV neg. Don't smoke or drink. SCC floor of mouth left side 4/2016. Dysp excis. rt palate 7/2017 Part gloss sev dys lat marg 2/2019 Part gloss free flap rt neck disc 5/2020 Part gloss bilat neck disc 7/2020 33 rad 3 cis.
| | | | Joined: Nov 2010 Posts: 167 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Nov 2010 Posts: 167 | Catherine - you described my reaction better than I could myself - thank you! I do think my "flash-back" will be a one time affair - it triggered a muscle memory that came over me in an unexpected wave. Now that I know it could come - it won't be unexpected! Massage is fantastic - I think I should schedule my next appointment!!!
Jennifer (39) 02/10 SCCa Tongue & Base, HPV- 03/10 Partial Glossectomy & ND 11/10 Revision due to additional nodes 12/20-2/2/11 IMRT & concommitant chemo 2/11 PEG in 3/11 PEG out Back at work and feeling good 03/24/11! 12/20/11 - 9 month f/u PET/CT - all clear!
| | | | Joined: Aug 2009 Posts: 207 "OCF Down Under" Gold Member (200+ posts) | "OCF Down Under" Gold Member (200+ posts) Joined: Aug 2009 Posts: 207 | Jen, I still hear the radiation machine noise in my head, and I wasn't the one having treatment.....Think if you can...'a massage isn't going to hurt me'....xxxx
Jeanna Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
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