| Joined: Jan 2011 Posts: 23 Member | OP Member Joined: Jan 2011 Posts: 23 | During chemo what is a normal amount of weight loss? My dads weight was approx 200 before first TX and now he weighs 183.5. three and a have weeks. and does anyone have any recipes for peg tubes that can increase calories? My dad burps up the ensure and it makes him nauseated.
Ceazar Father 66yrs S4 SCC left BOT DX Jan 2011 X-smoker Peg 1/31/11 chemo Cisp, 5fu, tax Heart attack 3-17-2011 7 Weeks Rad with erbitux Peg out Aug 2011 Pet Sept 2011 good (no activity) Pet Dec 2011 tumor hot
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Try using Carnation Very High Calorie. It has 560 calories per can. It can be purchased thru the Amazon link right here on the forum. Its a bit think so I dilute it with adding extra water. Thats just my personal preference.
My oncologist told me that I should not lose any weight while going thru treatments. I could have lost several pounds without a problem. But he insisted that the goal was to not lose any weight. I ended up losing 65 pounds and being hospitalized for malnutrition and dehydration a couple times.
A 17 pound weight loss in 3 weeks is way too much! His diet should be a minimum of 2500 calories daily. If he is getting 2500 calories daily and losing weight like that then he needs to up his calories. Its ok to get 3000 or even 3500 calories daily while going thru treatments. During that time his body burns up calories very quickly. Without proper nutrition he will begin to feel run down. Pay very close attention to his calories and also water intake daily. This can mean the difference between feeling horrible and getting hospitalized or getting thru this easier. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Cezar
Weight loss varies by individual. Doctors don't like to see any as Christine noted. If burping up Ensure makes him nauseous, I'm not sure what VHC would do. Usually you can get a can for free to try out at the hospital. Another option is to use a blender (Vitamix is the very best but expensive although they have a medical discount program for a reconditioned one for $300) to mix up high calorie shakes for your Dad. You can put in things he likes the taste of, add some flax seed oil and you will have a healthy supplement to put some more calories on. Ensure Plus has more calories than regular ensure and that's what I lived on the last three weeks of radiation and chemo. Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2009 Posts: 493 | I probably lost about 30 pounds but I have gained ten+ back. I was overweight before I went into treatment, so I am pretty comfortable with what I weigh now. I try to eat things that are relatively high in fat. They seem to be easier to get down, and I eat pretty small portions. I do make a shake everyday with a can of Ensure plus (Kroger's has a house brand that is cheaper than Ensure and it seems to have the same nutrients), a banana, and a big scoop of "good" ice cream. I also eat a lot of yogurt, and I like to have a snack of Ovaltine every so often. I also try to take a multivitamin every day.
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | I lost 70lbs altogether during treatment and then after surgery going from a solid 210 lbs to 140. I'm 3 years out of treatment and I'm just now starting to get some of that weight back on me, a very solid 175 at the moment.
I'll never get back the rest of that weight, I can't keep enough calories going in me to sustain it anyway even with 6 cans of Ensure Plus a day with MuscleMilk Protien powder mixed in (adds 27g of protien and 140 calories per scoop!). High protien will help keep the lean muscle mass from withering away, it does make it thick though so I use milk to thin it out.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | I lost 61 lbs and and left 30 behind permanently (which was no loss). I am certainly no expert on PEG feeding (not having had one) but from other posters knowledge, slow, gravity drip is prefered. Being elevated will also help.
20 lb weight loss is the trigger that the docs will order a nutritionist to start working with you, if you haven't already seen one.
Personally I found that Ensure and Boost could gag a maggot so I used Carnation instant breakfast (the VHC type wasn't around when I was going through treatment). I added Hagen Daz (doctors orders).
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I lost over 21% of my total pre Tx weight and I couldn't afford to loose a pound. I even stopped biking about a month pre Tx and I probably only gained a few pounds. Since my schedule and the BRUTAL winters we suffer in southwest Fl, I usually stop riding in Nov and don't get back on the bike until late April, early May. This non riding season I have relearned the art of gaining weight so this coming bike season will be a difficult start.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | David...you know I appreciate you, your humor etc...but I've been snowed in for a few weeks so anytime you want to trade locales I'm more then willing. There is amazing biking areas around here as long as you don't get hit by logging trucks 
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | My RO who did NOT recommend a peg tube for me said if I lost more than 10% of my weight, she would make me have a tube put in. I only lost 5 lbs in the 7 weeks living mostly on Ensure Plus. I didn't know about Carnation VHC if it existed in 1997.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Eric,
I stop riding when the sunrise temps dip below that cruel and frigid 60 degree mark and then comes tax season so that knocks 1/2 of the year out here. I can only imagine that I would have much less time in Idaho. I need to move further south where it's HOT all year long!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | |
Forums23 Topics18,245 Posts197,129 Members13,316 | Most Online1,788 Jan 23rd, 2025 | | | |