| | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | I tried to show Ron, who continues to smoke...but he wouldn't watch it he just walked away...
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 701 Likes: 1 | Christine,
You were wonderful in the commercial!!! I could hear you singing!!! And your other clips are very moving. I was very touched by your story, I felt like I was hearing it for the first time. Thank you for this...it took a lot of courage to bare your soul.
Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Good job, Christine. It takes a "gutsy" person to do what you did in those commercials, and you sure are that - "gutsy!" Hey, that's a compliment  You did great! Everyone is so proud. julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | I have known how strong a person you are since the first time we met 3 1/2 years ago. Having visited you in the hospital after what I believe was your second operation, further showed me your strength.
Watching your videos has given me more of an in depth understanding of what a wonderful person you are and what you have gone through. You truly are an inspiration and one of the best advocates for oral cancer awareness. I am proud to call you my friend and am truly a blessed by your friendship.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Well, to me I can't begin to describe the feelings I had when I watched those. I don't think I can go there really.
What I will do though is tell you a story on how powerful those videos are...to those that are not a part of this forum so have no clue on how many people Christine has helped, supported and inspired.
For the last 6 weeks or so I have been on a project to promote Oral Cancer Awareness month in April. I organized a "call center" at the pizza place I "help out" at and have gathered several volunteers to come and contact dentists around the country to get involved and do screenings.
I shared with these volunteers Christine's videos.
To see there reactions...then to hear each one of them say how good they felt about "smiling and dialing" because they were making a difference. To know that they were helping save lives, not just from death but from such dramatic change and loss from what they take for granted everyday.
Christine, you are my hero my dear. You inspire me to do more and I'm using that inspiration as motivation to take action and raise awareness to help prevent others from having to walk this path.
Love you my dear friend.
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jan 2011 Posts: 25 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jan 2011 Posts: 25 | Christine,
You are amazing. Utterly amazing. We have all gained so much from having you on this forum. Thanks for all you do!
Yvonne
Age 35
Superficial SCC lateral tongue
HPV(-), nonsmoker
Right lateral tongue resection 1/17/11 w/ Alloderm Graft
Proud mother of 2
Enjoy walking/aerobic kickboxing
Pittsburgh Steelers Fan! (#86)
| | | | | Joined: Jan 2010 Posts: 142 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2010 Posts: 142 | Not alot to say but WOW! Great job! That commercial should be
played in every classroom, in every country every morning.
55 12/17/09 High Grade Muceopidermoid Carcinoma Alerted by Largo my Mini Schnauzer
1/18/10 Clr PET
1/27/10 Surgery found Perineural invasion
3/22/10 Began Rad
05/05/10 34 rads
8/19/10 Clr Pet Scan
12/13/10 Clr Ultra sound/biopsy
5/4/11 MRI Clear
8/2/11 All Clear
5/25/12 All Clear
6/3/2016 All Clear
| | | | | Joined: May 2010 Posts: 638 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: May 2010 Posts: 638 | Just want to add the only word I can think of. Extraordinary. Extraordinary message, extraordinary courage, extraordinary woman - just extraordinary
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED Still underweight
| | | | | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 Likes: 1 |
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | | | | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: May 2008 Posts: 357 | I was in a movie theater, saw the commercial & probably created a scene when I yelled, "Oh, my God! I know her. This is the commercial we've been talking about on the Oral Cancer Site."
It was a marvelous commercial, and the OC survivors were awesome. I had seen the Truth site, so I knew your voice, & I heard you sing, too.
YOU are an amazing person!
Marlene
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
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