| | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Yes....I agree. I often wonder about those that don't
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Cheryl
Remember that even Paranoids have real enemies and Cancer is definitely not our friend. So it's actually normal in our case to have so called paranoid feelings. Actually I was a guest lecturer at a University Psychology course on how in some instances, "paranoia" is not the right term since it comes from the Greek words para (beyond) and noos (mind) while feelings based on intuitive knowledge are para (beyond) and gnosis (knowledge), so I had a neologism Paragnosis feelings.
So relax, have a glass of wine or MJ cookies. We all got though this and you will do. I was scared and had scary thoughts but I just made them background chatter. Plus I was careful crossing the street
Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | It's always smart to look both ways..
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | especially if you've had more then a few mj cookies...
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | OP "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | This is all true and you have made me laugh on a day that kinda sucked for me!!! Thank you... Will start wearing full body armor while crossing as well!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Feb 2011 Posts: 117 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Feb 2011 Posts: 117 | I was talking to a friend in AZ today and he asked about my pain (which has been fairly intense but I can only take the hyrocodone every 4 hrs so I have to deal with it).... anyway this friend said "you know you need some MJ" I said can't get that here... he said You can get it in mexico..... so he's gonna work on that for me.... funniest part.... he is an old friend of my late father's and he is 81 this year. Gotta love it !
Cheryl -- I think you needed some of those "special" brownies today for sure.
Ingrid
DX 12/6/10 of T3 SCC Tongue.
Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear.
Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
| | | | | Joined: Jun 2009 Posts: 138 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2009 Posts: 138 | Wow - I wouldn't want to be any part of someone trying to smuggle MJ from Mexico to Arizona. I live in Arizona and the border is not a friendly place these days. Medical MJ is already legal in Arizona, they just don't have the distribution places going yet. It should be by summertime. Please don't break any Arizona laws. We have the "toughest Sheriff in America" - lol.
BOT-SCC Partial glossectomy 7/16/09.
Stage IV, Rt ND 10/2/09.
Teeth out 11/5/09.
Port/peg in, 11/20/09.
7 wks rad & chemo, end 1/22/10
lung, colon biopsies 1/9/11 - both cancer
colon resect surg 1/10/11
Folfox + Avastin - discontinued 6/11
lung surgery 3/13/12, 5/1/12
mets to liver and bones
passed away 9/4/13
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | OP "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | yeah... i have never felt so in need yesterday was brutal. I have moved past it... I am a take action type of person I guess. I managed after much emotional trauma to get what I wanted - which really was just a qualified person to look at it. So I am ok. But realistically... it shouldn't be this hard.
Thanks everyone... you all make me laugh when I am duly stressed... laughter is the best medicine! And people I love brownies.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: May 2010 Posts: 224 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2010 Posts: 224 | I wish medicinal was legal everywhere for us. Seriously, I don't want to smoke it, and it's so much nicer then popping pills that make you feel the same anyways, they just don't taste as good, lol.
Docs up here are funny though. They say, just a moment... leave the room...take off their docs attire... come back and introduce themselves by their first and last name and just as a friend... tell you about mj and say it's better then any antidepressant or anxiety/pain med... leave the room and come back all doctor again and move along with the appointment.
They did this to my boyfriends father, and now to me. I just don't want to smoke it, but eat... that's something i could get into, hahahaha.
Hope you have better days with ur docs and they stop treating you like a hot potato.
25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010
| | | | | Joined: Aug 2010 Posts: 157 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Aug 2010 Posts: 157 | Ok, as a younger generation of MJ user I have really tried them all and done my own research and as well have my own beliefs. Even got into and MJ battle with my former shrink about it who insisted is caused my depression. Now, healthy as a kitten, knock on wood, no more depression! I do get the background chatter of " I will be back! " or the bad dreams at times but I curse back and grab the Rat Fink bong. Look, I quit smoking at Dx, and I smoked hardcore. Yeah I am only 28, but I seriously did do enough drinking and smoking for an entire Irish soccer team.
My stance is this, How are you to tell someone how they feel or what should make them feel better? Except the few weeks I could not stop coughing and barely open my mouth I vaporized as well as smoked MJ and I feel it helped me through. Not only with coping but my appetite. I never once through treatment had a loss of appetite, just a huge loss in variety. There were days I was on the table getting zapped thinking about burrittos.
Carcinogens, carcinogens...I find it hard to believe MJ produces anywhere near the amount of carcinogens in a single cig or the amount of HC produced at a daily drag race. Stay away from putting MJ in flavored tobacco papers and I really feel you are ok, I refuse to because of how addicted I was to the stupid guy on the horse with the hat. Ive had one drink since treatment, and as Minh said...VERY METALLIC!!!
I would rather stick it to the man, and look him dead in the eye and say...." Would you rather little Billy have a few swigs of your hideaway scotch and borrow the porsche,or take a few bong rips, put on a DEAD album and eat all the cereal?!". I have served time for MJ before, and even been looked at as some heroin addict for being pro MJ. I feel safe using it and will do anything to not return to a 2 pack-a-day fiend of rat poison.
Your Friend,
Nathan
P.S.- 2nd post scan next month, Breath and Believe right?...Where did I put those papers...?
Last edited by Nate82; 03-16-2011 11:03 AM.
SCC left lateral tongue, left neck dissection. 2 nodes positive. 3 All Clear then ITS BACK 8/23/11 Shows 1cm in tongue in CT SCAN, Radial Free Arm Flap with Radical Neck Dissection 9/20/11 , All Nodes Negative, But Tongue Tumor Poorly Differentiated. Awaiting next step in treatment on 10/5/11... RIP Nate 7/28/12
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