| | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi all:) It's been a long time since I've been on the forums and I missed you all. Even though I wasn't here I thought of everyone often and kept in touch with some on Facebook.
I am still cancer free and I go to my doctor every 3 months. My next appointment is on 2/7/11. I moved twice and had a baby since the last time I was here. Our baby was born 2 months premature but is doing well:)
I'm looking forward to spending time here again and "meeting" the new posters since I've been gone.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | how awesome! Congratulations on everything!
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Aug 2005 Posts: 307 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Aug 2005 Posts: 307 | Welcome back Suzanne and congratulations on the birth of your son!
Shelley
Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Welcome back!!! Congrats, kids are amazing, really it was because of my boys that I chose to fight this crap in the first place.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Suzanne, Ive missed you on OCF. So happy to see that you have comeback!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Welcome back to OCF Suzanne . I have enjoyed keeping in touch via FB and watching the house, your tummy and now new baby Nicholas grow  Love Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Suzanne
Where have you been girl? OCF has not been the same without you.
As a parent myself, I was hoping that you could join our ranks also. You are just way too YOUNG for all this. I confess to a selfish reason to be so glad you are back: you always appreciated my twisted sense of humor and did not read goofy things into my passionate comments and posts. (We won't mention the posters who did, since thank God, most of them have dropped off).
How wonderful that the tests confirm you are cancer free. My little brother was very premature yet he is a six foot redhead now. Please keep posting. It's really important for all the newbies to see that TX can actually work. Plus with all the youngsters getting this horrible disease, your story can give them all hope. Every day since March 30th of last year, I have checked for a post from you and it was wonderful to see your post to Buster on Jan 17th. I was going to PM but I was afraid that my fantasy of you totally overcoming this cancer and simply forgetting about it would be shattered. I'm glad you are back but I wish you had never had to even join us.
Shout out to Gabe for sharing your son's name: Nicholas. I'm a Facebook objector, sort of like "Keep off my Cyber Lawn".
As ever
Peace and Love
Charm
Last edited by Charm2017; 01-19-2011 06:30 PM. Reason: typos
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Awww...Charm you bring a tear to my eye:) My life has been crazy but I realized I cannot be too busy for OCF and I must make time for this ever important forum. I remember so clearly sitting on my couch looking online and finding this site. There is no doubt in my mind the wonderful people here helped me through it and I have to try to do that for others. You know I love your posts..I always have!!
Yes, my son's name is Nicholas and he was born on 11/25 and I was due on 1/14. He was very early and I had an emergency c-section on Thanksgiving. He was 4.6 when he was born and stayed in the NICU for about 3 weeks. It was hard but we made it through like we do everything else!! He is 6.10 now.
Thank you all for a warm welcome back:)!!
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | So glad you are back. I have been leeping up with you on FB. Enjoy seeing those pictures. I have missed your positive upbeat messages on here.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: May 2010 Posts: 224 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2010 Posts: 224 | Congrats on the kiddo. That is one thing I have been stuck in limbo on. My docs have said it's my choice, but because they are saying this was a genetic issue, that any child i have will have a 75% chance of getting this at my age or younger. I don't like hearing that, but that also came from a doc that told me after i have radiation, if it comes back and is inoperable they won't be able to do anything but keep me comfortable till i pass.
I am pretty sure no one likes to hear that at 25. But I am still in limbo about it all, so I am glad to see someone around my age went with having a child and things are going good for them.
Congrats on being cancer free also!! I get my 6 month scan results next monday and I am hoping for all clear!!
It's tough to keep up with this sometimes, but I realized taking time away and seeing people on fb post about ppl having reoccurences and I am out of the loop kinda hurts, cuz I want to be there however I can for fellow patients. I just have to make time for this.
But congrats on all of your good news!!
25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010
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